Tate Denise, Forchheimer Martin
Department of Physical Medicine and Rehabilitation, University of Michigan , Ann Arbor.
Top Spinal Cord Inj Rehabil. 2014 Summer;20(3):181-90. doi: 10.1310/sci2003-181.
Quality of life (QOL) is a dynamic concept that means different things to different people, both in the general public and within the research community. Because of this, a common definition of QOL has been hard to achieve. This article reviews cross-cultural issues related to QOL research in spinal cord injury (SCI). Many factors influence QOL for persons with SCI, including observable and objective indicators and subjective self-report ones. The World Health Organization's International Classification of Function, Disability and Health is used in this article as a framework to better understand how these factors may influence QOL. A number of important steps are summarized with respect to measurement issues in QOL. A comparison between data from 2 countries (United States and Brazil) using the International SCI QOL Basic Data Set shows similarities in scores and good reliability in the Brazilian sample. Substantial, significant correlations were observed among the SCI QOL Basic Data Set items and the WHOQOL-BREF within the US sample. The article ends with a set of recommendations for the development of cross-cultural measures of QOL for use in the SCI population.
生活质量(QOL)是一个动态概念,对于普通大众和研究界的不同人群而言有着不同的含义。正因如此,很难达成一个关于生活质量的通用定义。本文回顾了与脊髓损伤(SCI)生活质量研究相关的跨文化问题。许多因素会影响脊髓损伤患者的生活质量,包括可观察和客观的指标以及主观的自我报告指标。本文采用世界卫生组织的《国际功能、残疾和健康分类》作为框架,以更好地理解这些因素如何影响生活质量。关于生活质量测量问题总结了一些重要步骤。使用国际脊髓损伤生活质量基本数据集对两个国家(美国和巴西)的数据进行比较,结果显示巴西样本的得分具有相似性且可靠性良好。在美国样本中,脊髓损伤生活质量基本数据集项目与世界卫生组织生活质量简表(WHOQOL-BREF)之间存在显著的相关性。文章最后针对开发用于脊髓损伤人群的跨文化生活质量测量方法提出了一系列建议。