Aoun Samar M, Toye Chris, Slatyer Susan, Robinson Andrew, Beattie Elizabeth
Palliative Care Unit, School of Psychology and Public Health, La Trobe University, Melbourne, Vic., Australia.
Institute of Health Research, Notre Dame University, Fremantle, WA, Australia.
Health Soc Care Community. 2018 Jul;26(4):e578-e586. doi: 10.1111/hsc.12575. Epub 2018 Apr 10.
This feasibility study aimed to identify and address the support needs of family carers (FCs) of people living with dementia and to assess whether the use of the Carer Support Needs Assessment Tool (CSNAT) intervention in home-based care was acceptable and relevant to FCs. The CSNAT intervention comprised two FC support needs assessment visits, 7 weeks apart, plus associated actions addressing prioritised needs by the Client Care Advisors of a community care service in Western Australia in 2015. Telephone interviews were conducted with FCs on their experience using the CSNAT at the end of the intervention. Twenty-one FCs were involved in the intervention and 15 of them completed the feedback interviews. Care recipients had moderate to severe dementia. The top five support needs reported by FCs were: having time to yourself in the day; knowing what to expect in the future; practical help in the home; looking after your own health and dealing with your feelings and worries. Three themes summarised their experience: a straightforward structured approach; awareness, acknowledgement and acceptance of their situation; and provision of support. FCs appreciated the opportunity to be heard and acknowledged, to have their practical and psychosocial support needs facilitated, to identify what is important to them and to receive a response in a timely manner. The CSNAT approach offered a structured carer-led, person-centred, supportive intervention that facilitated discussion between the family carer and the service provider about support needs and strategies to address them.
本可行性研究旨在确定并满足痴呆症患者家庭照顾者（FCs）的支持需求，并评估在家居护理中使用照顾者支持需求评估工具（CSNAT）干预措施对FCs是否可接受且适用。CSNAT干预措施包括两次间隔7周的FC支持需求评估访视，以及西澳大利亚社区护理服务的客户护理顾问针对优先需求采取的相关行动（于2015年实施）。干预结束时，对FCs进行了电话访谈，了解他们使用CSNAT的体验。21名FCs参与了干预，其中15人完成了反馈访谈。护理对象患有中度至重度痴呆症。FCs报告的前五项支持需求为：白天有属于自己的时间；了解未来的预期；家中的实际帮助；照顾好自己的健康以及处理自己的情绪和担忧。三个主题概括了他们的体验：一种直接的结构化方法；对自身状况的认识、认可和接受；以及支持的提供。FCs赞赏有机会被倾听和认可，其实际和心理社会支持需求得到促进，明确对自己重要的事情，并及时得到回应。CSNAT方法提供了一种由照顾者主导、以人为本的结构化支持性干预措施，促进了家庭照顾者与服务提供者之间关于支持需求及应对策略的讨论。
