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评估患者及利益相关者参与研究的情况:从理论到实践

Evaluating patient and stakeholder engagement in research: moving from theory to practice.

作者信息

Esmail Laura, Moore Emily, Rein Alison

机构信息

Academy Health, 1150 17th Street NW, Suite 600, Washington, DC 20036, USA.

出版信息

J Comp Eff Res. 2015 Mar;4(2):133-45. doi: 10.2217/cer.14.79.

Abstract

Despite the growing demand for research that engages stakeholders, there is limited evidence in the literature to demonstrate its value - or return on investment. This gap indicates a general lack of evaluation of engagement activities. To adequately inform engagement activities, we need to further investigate the dividends of engaged research, and how to evaluate these effects. This paper synthesizes the literature on hypothesized impacts of engagement, shares what has been evaluated and identifies steps needed to reduce the gap between engagement's promises and the underlying evidence supporting its practice. This assessment provides explicit guidance for better alignment of engagement's promised benefits with evaluation efforts and identifies specific areas for development of evaluative measures and better reporting processes.

摘要

尽管对涉及利益相关者的研究需求不断增长,但文献中仅有有限的证据来证明其价值或投资回报率。这一差距表明对参与活动普遍缺乏评估。为了充分为参与活动提供信息,我们需要进一步研究参与式研究的成效,以及如何评估这些效果。本文综合了关于参与式研究假设影响的文献,分享了已评估的内容,并确定了缩小参与式研究的承诺与支持其实践的潜在证据之间差距所需的步骤。这一评估为使参与式研究的预期效益与评估工作更好地结合提供了明确指导,并确定了评估措施发展和更好报告流程的具体领域。

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