Dür Mona, Coenen Michaela, Stoffer Michaela Alexandra, Fialka-Moser Veronika, Kautzky-Willer Alexandra, Kjeken Ingvild, Drăgoi Răzvan Gabriel, Mattsson Malin, Boström Carina, Smolen Josef, Stamm Tanja Alexandra
Medical University of Vienna, Department of Internal Medicine III, Division of Rheumatology, Währinger Gürtel 18-20, 1090, Vienna, Austria.
IMC University of Applied Sciences Krems, Department of Health Sciences, Occupational Therapy, Piaristengasse 1, 3500, Krems, Austria.
Health Qual Life Outcomes. 2015 Feb 25;13:27. doi: 10.1186/s12955-015-0214-8.
Personal factors (PFs) are internal factors that determine functioning and the individuals' experience of disability. Their coverage by patient-reported outcome measures (PROMs) has not been examined in rheumatoid arthritis (RA) so far. The aims of this study were to identify PFs important in the life stories of people with RA and to determine their coverage by PROMs used in RA.
The qualitative data of people with RA was explored to identify PFs. Additionally a systematic literature search was conducted to find PROMs used in RA. PROMs items were linked to the components, domains and categories of the International Classification of Functioning, Disability and Health (ICF) to determine the coverage of important PFs by PROMs.
Twelve PFs were found to be important in the life stories of people with RA. The PFs coping and reflecting about one's life in an optimistic way were covered most frequently, each by 14 of the 42 explored PROMs, while job satisfaction was not covered at all. The London Coping with Rheumatoid Arthritis Questionnaire, General Self-Efficacy Scale, Arthritis Self-Efficacy Scale, Rheumatoid Arthritis Self-Efficacy Questionnaire and Revised Ways of Coping Inventory covered most PFs. Nineteen PROMs did not cover any of the PFs.
Several PFs were identified as important in the life stories of people with RA, but only 55% of the PROMS covered some of these PFs. When evaluating PFs important to people with RA, health professionals should be alert on which PROMs can be used to assess which PFs.
个人因素（PFs）是决定功能以及个体残疾体验的内在因素。迄今为止，类风湿关节炎（RA）患者报告结局测量指标（PROMs）对其覆盖情况尚未得到研究。本研究旨在确定对RA患者生活经历重要的个人因素，并确定RA中使用的PROMs对这些因素的覆盖情况。
对RA患者的定性数据进行探究以确定个人因素。此外，进行系统的文献检索以查找RA中使用的PROMs。将PROMs项目与《国际功能、残疾和健康分类》（ICF）的组成部分、领域和类别相关联，以确定PROMs对重要个人因素的覆盖情况。
发现12个个人因素对RA患者的生活经历很重要。以乐观方式应对和反思生活的个人因素被覆盖的频率最高，在所探究的42个PROMs中，每个因素均被14个PROMs覆盖，而工作满意度则完全未被覆盖。《伦敦类风湿关节炎应对问卷》《一般自我效能量表》《关节炎自我效能量表》《类风湿关节炎自我效能量表问卷》和《应对方式修订量表》覆盖的个人因素最多。19个PROMs未覆盖任何个人因素。
确定了几个对RA患者生活经历重要的个人因素，但只有55%的PROMs覆盖了其中一些个人因素。在评估对RA患者重要的个人因素时，卫生专业人员应留意哪些PROMs可用于评估哪些个人因素。
