印度南部一家护理院的感染艾滋病毒儿童的生活质量和心理社会幸福感。
Quality of life and psychosocial well-being among children living with HIV at a care home in Southern India.
作者信息
Lang Tess, Heylen Elsa, Perumpil Sheeja, Shet Anita, Perumpil Mathew, Steward Wayne, Shamban Emily, Ekstrand Maria L
机构信息
Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
St. John's College of Nursing, Bangalore, Karnataka, India.
出版信息
Vulnerable Child Youth Stud. 2014;9(4):345-352. doi: 10.1080/17450128.2014.933942.
This study was designed to evaluate the quality of life (QOL) of children living with HIV at an institutional care home in Bangalore, India. The Sneha Care Home is a unique residence that provides educational and community support with a focus on physical, nutritional, medical, and psychological care for orphans and vulnerable children. Cross-sectional health measures and interview data were collected from 97 residents including 52 boys and 45 girls between 5 and 12 years of age (mean age = 9). QOL was measured with the Pediatric Quality of Life 4.0 (PedsQL) Inventory. Caregivers perceived children to have an overall higher QOL than was self-reported by children (total score 83 vs. 78). Our findings indicated self-reported QOL decreased with age of the child, while caregiver-reported QOL increased with age, suggesting a need to ensure greater psychological support for older children. Physical measures showed the children's clinical severity of disease remained well controlled living in this residential, values-based care home.
本研究旨在评估印度班加罗尔一家机构护理院中度感染艾滋病毒儿童的生活质量（QOL）。斯内哈护理院是一家独特的住所，为孤儿和弱势儿童提供教育及社区支持，重点关注身体、营养、医疗和心理护理。对97名居民（包括52名男孩和45名女孩，年龄在5至12岁之间，平均年龄 = 9岁）收集了横断面健康指标和访谈数据。使用儿童生活质量量表4.0（PedsQL）来衡量生活质量。护理人员认为儿童的总体生活质量高于儿童自我报告的水平（总分83分对78分）。我们的研究结果表明，自我报告的生活质量随儿童年龄增长而下降，而护理人员报告的生活质量随年龄增长而上升，这表明需要确保为年龄较大的儿童提供更多心理支持。身体指标显示，生活在这家以价值观为基础的寄宿护理院的儿童，其疾病的临床严重程度得到了很好的控制。
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