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[女性照顾者照顾患有慢性病的亲属的经历]

[The experience of women care cargivers with chronic conditions of dependent relatives].

作者信息

Martínez Marcos Mercedes, De la Cuesta Benjumea Carmen

机构信息

Sección Departamental de Enfermería, Universidad Autónoma de Madrid, Madrid, España.

Departamento de Psicología de la Salud, Universidad de Alicante, Alicante, España.

出版信息

Aten Primaria. 2016 Feb;48(2):77-84. doi: 10.1016/j.aprim.2015.03.006. Epub 2015 May 19.

Abstract

OBJECTIVE

To describe the experience of women caregivers with chronic conditions who care for a dependent relative.

DESIGN

Qualitative study based on constructivist grounded theory.

LOCATION

Study conducted on two Health Areas urban of the Community of Madrid.

PARTICIPANTS

Thirty nine women with a chronic condition who take care of dependent relatives were selected by means of purposive sampling.

METHOD

Data were collected through 23 semi-structured interviews and 2 focus groups between April 2010 and December 2011. Grounded theory procedures were used in the data analysis.

RESULTS

To feel their life hampered describes the subjective experience of family caregivers with chronic conditions who take care of a dependent relative. When comparing their past life with the current life they become aware of the losses they have suffered over time. They feel less strong, sadder and less free; they worry about how to meet the demands of family care. The life they are leading makes them question the meaning of their own lives.

CONCLUSIONS

This study shows the losses realized day by day by women caregivers with a chronic illness, which lead them to lose the meaning of their own lives. To know the experience of these women caregivers will help develop interventions and specific services that compensate for the losses they feel and help improve their quality of living.

摘要

目的

描述患有慢性病的女性照料者照料依赖亲属的经历。

设计

基于建构主义扎根理论的定性研究。

地点

在马德里自治区的两个城市健康区开展研究。

参与者

通过目的抽样选取了39名患有慢性病且照料依赖亲属的女性。

方法

在2010年4月至2011年12月期间,通过23次半结构化访谈和2次焦点小组收集数据。数据分析采用扎根理论程序。

结果

感觉生活受到阻碍描述了患有慢性病且照料依赖亲属的家庭照料者的主观体验。当将她们过去的生活与当前生活相比较时,她们意识到随着时间推移自己所遭受的损失。她们感觉力气变小、更悲伤且更不自由;她们担心如何满足家庭照料的需求。她们当前的生活使她们质疑自己生命的意义。

结论

本研究显示了患有慢性病的女性照料者日复一日所遭受的损失,这些损失导致她们失去自己生命的意义。了解这些女性照料者的经历将有助于制定干预措施和特定服务,以弥补她们所感受到的损失并帮助改善她们的生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/323f/6877853/f904ded06d40/fx1.jpg

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