Crotty Mikaila M, Henderson Julie, Ward Paul R, Fuller Jeffrey, Rogers Anne, Kralik Debbie, Gregory Sue
School of Nursing & Midwifery, Flinders University, GPO Box 2100, Adelaide, 5001, Australia.
Discipline of Public Health, Flinders University, GPO Box 2100, Adelaide, 5001, Australia.
BMC Health Serv Res. 2015 Jul 4;15:257. doi: 10.1186/s12913-015-0897-x.
People with mental illness have been identified as being more likely to experience type 2 diabetes and the complications arising from this, necessitating more complex chronic illness self-management. Social support has been identified as a significant factor in the successful adoption of lifestyle change for people with type 2 diabetes, however people with mental illness often have impoverished social networks leading to greater reliance upon professional care givers. This study maps the support provided by formal (paid and professional carers) and informal networks to people with mental illness and type 2 diabetes, comparing the experiences of people with a spouse with those without one.
Interviews were conducted with 29 clients of a community nursing service with mental health problems who receive professional support to self-manage type 2 diabetes. Participants were asked to complete an egocentric social network map which involved mapping the people and services who support them to manage their health. Demographic data was collected as was data about co-morbidities and service use within the last 6 months. Network maps were supplemented by a series of open-ended questions about self-management practices, who supports these practices and what support they provide.
Participants identified small social networks with few friendship ties. These networks had diminished due to illness. For people with a spouse, this person provided significant support for chronic illness self-management performing a range of daily care and illness management tasks. People without a spouse were more reliant on professional and paid care givers for daily care and illness management. People without a spouse also demonstrated greater reliance upon weak social ties for emotional support and social connection and often developed friendships with formal caregivers.
Spousal support reduces the need for professional services. In the absence of a spouse, participants were more reliant upon paid and professional carers and weaker social ties for chronic illness support and social connection leading to greater vulnerability of loss of support.
患有精神疾病的人被认为更易患2型糖尿病及其并发症,这就需要更复杂的慢性病自我管理。社会支持已被确定为2型糖尿病患者成功改变生活方式的一个重要因素,然而,患有精神疾病的人往往社交网络匮乏,导致他们更依赖专业护理人员。本研究描绘了正式(付费和专业护理人员)和非正式网络为患有精神疾病和2型糖尿病的人提供的支持,比较了有配偶者和无配偶者的经历。
对29名有心理健康问题且在自我管理2型糖尿病方面接受专业支持的社区护理服务客户进行了访谈。参与者被要求完成一张以自我为中心的社会网络图,其中包括描绘支持他们管理健康的人员和服务。收集了人口统计学数据以及过去6个月内的共病和服务使用数据。通过一系列关于自我管理实践、谁支持这些实践以及他们提供何种支持的开放式问题对社会网络图进行补充。
参与者指出其社交网络较小,友谊关系较少。这些网络因疾病而减少。对于有配偶的人来说,配偶为慢性病自我管理提供了重要支持,承担了一系列日常护理和疾病管理任务。没有配偶的人在日常护理和疾病管理方面更依赖专业和付费护理人员。没有配偶的人在情感支持和社会联系方面也更依赖薄弱的社会关系,并且经常与正式护理人员建立友谊。
配偶的支持减少了对专业服务的需求。在没有配偶的情况下,参与者在慢性病支持和社会联系方面更依赖付费和专业护理人员以及较弱的社会关系,这导致他们在失去支持时更易受到伤害。