Schmitz C, Ansmann L, Ernstmann N
IMVR - Institute of Medical Sociology, Health Services and Rehabilitation Science, University of Cologne, Cologne.
Geburtshilfe Frauenheilkd. 2015 Jul;75(7):702-709. doi: 10.1055/s-0035-1546271.
The importance of breast cancer patients (BPs) being supplied with sufficient information is well known. This study investigated the unfulfilled psychosocial information requirements of multimorbid BPs. This study records the unfulfilled psychosocial information requirements of 4166 patients, who were treated at one of the fifty breast centres in North Rhine Westphalia. The Cologne patient questionnaire for breast cancer 2.0 included in the postal survey following hospital stays records the information requirements using an adapted version of the "Cancer patient information needs" scale. Through a univariate analysis using the χ test, it was investigated whether multimorbid BPs had significantly different psychosocial information requirements than BPs without further concomitant illnesses. In general, it transpired that BPs had relatively low unfulfilled information requirements regarding work (20.7 %), everyday life (26.8 %), illness (27.4 %) and treatment (35.7 %), though such requirements were higher when it came to health-related behaviour (54.2 %). Multimorbid BPs had significantly lower unfulfilled information requirements regarding work and significantly larger ones regarding treatment in comparison to BPs without concomitant illnesses. Renal diseases and concomitant mental illnesses were associated with particularly high information requirements (p < 0.05). The results of our study should clarify the complexity and heterogeneity of information requirements of breast cancer patients in oncological care and should help to design the supply of information to be more patient-oriented.
为乳腺癌患者（BPs）提供充分信息的重要性是众所周知的。本研究调查了患有多种疾病的乳腺癌患者未得到满足的心理社会信息需求。本研究记录了在北莱茵-威斯特法伦州50个乳腺中心之一接受治疗的4166名患者未得到满足的心理社会信息需求。住院后邮寄调查中包含的科隆乳腺癌患者问卷2.0使用“癌症患者信息需求”量表的改编版记录信息需求。通过使用χ检验的单变量分析，研究了患有多种疾病的乳腺癌患者与没有其他伴随疾病的乳腺癌患者在心理社会信息需求上是否存在显著差异。总体而言，结果表明，乳腺癌患者在工作（20.7%）、日常生活（26.8%）、疾病（27.4%）和治疗（35.7%）方面未得到满足的信息需求相对较低，不过在健康相关行为方面（54.2%）此类需求较高。与没有伴随疾病的乳腺癌患者相比，患有多种疾病的乳腺癌患者在工作方面未得到满足的信息需求显著较低，而在治疗方面则显著较高。肾脏疾病和伴随的精神疾病与特别高的信息需求相关（p < 0.05）。我们的研究结果应能阐明肿瘤护理中乳腺癌患者信息需求的复杂性和异质性，并有助于设计更以患者为导向的信息提供方式。
