Cruz Joana, Marques Alda, Figueiredo Daniela
Department of Health Sciences (SACS), University of Aveiro, Aveiro, Portugal.
School of Health Sciences, University of Aveiro (ESSUA), Aveiro, Portugal.
Health Soc Care Community. 2017 Jan;25(1):11-25. doi: 10.1111/hsc.12292. Epub 2015 Oct 26.
Caring for a relative with chronic disease influences multiple dimensions of family carers' lives. This study aimed to provide an overview of the impacts of chronic obstructive pulmonary disease (COPD) on family carers and identify interventions aimed at supporting them. A narrative review was conducted. Searches were performed in electronic databases using a combination of keywords. Articles were screened for relevance and selected articles were analysed in two groups considering the study aims. Eighteen articles were selected. Fifteen studies evaluated the impacts of COPD on family carers and three studies presented interventions aimed at supporting them. Carers reported negative impacts of caring on physical health, emotional, social, relational and financial/employment life dimensions. Positive aspects of care-giving were reported in four studies and were related to carers' personal growth and satisfaction in being able to do something useful for their relatives. The existing interventions were directed at both patients and carers; however, studies provided limited information on how carers were involved, hindering the interpretation of findings. In conclusion, COPD poses several unique challenges to family carers related to the specificities of the disease. Further research with appropriate intervention studies is needed to promote carers' healthy adjustment to the disease.
照顾患有慢性病的亲属会影响家庭照顾者生活的多个方面。本研究旨在概述慢性阻塞性肺疾病（COPD）对家庭照顾者的影响，并确定旨在支持他们的干预措施。进行了一项叙述性综述。使用关键词组合在电子数据库中进行检索。筛选文章的相关性，并根据研究目的将选定的文章分为两组进行分析。共选定18篇文章。15项研究评估了COPD对家庭照顾者的影响，3项研究提出了旨在支持他们的干预措施。照顾者报告了照顾对身体健康、情感、社会、人际关系和财务/就业生活方面的负面影响。四项研究报告了照顾的积极方面，这些方面与照顾者的个人成长以及能够为亲属做一些有益的事情所带来的满足感有关。现有的干预措施针对患者和照顾者；然而，研究提供的关于照顾者如何参与的信息有限，这妨碍了对研究结果的解读。总之，COPD给家庭照顾者带来了与疾病特殊性相关的若干独特挑战。需要进行进一步的研究及适当的干预研究，以促进照顾者对该疾病的健康调适。
