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白癜风患者健康相关生活质量及心理困扰相关因素的调查

Investigation of factors associated with health-related quality of life and psychological distress in vitiligo.

作者信息

Bonotis Konstantinos, Pantelis Konstantinos, Karaoulanis Sokratis, Katsimaglis Chrysanthos, Papaliaga Maria, Zafiriou Efterpi, Tsogas Panagiotis

机构信息

Department of Psychiatry, Faculty of Medicine, University of Thessaly, Larisa, Greece.

Department of Dermatology, Faculty of Medicine, University of Thessaly, Larisa, Greece.

出版信息

J Dtsch Dermatol Ges. 2016 Jan;14(1):45-9. doi: 10.1111/ddg.12729.

Abstract

BACKGROUND AND OBJECTIVES

Skin diseases distort the body image with possible negative effects on the quality of life and psychosocial health of patients. While vitiligo does not affect the physical well-being, it may be psychologically distressing. The present study was based on the hypothesis that particular factors might be critical regarding the adjustment to the disease.

PATIENTS AND METHODS

We investigated the vitiligo-related quality of life and psychological distress of 216 patients diagnosed with the disease in relation to demographic factors, disease components, and personality traits. For this purpose, we administered the self-completed questionnaires Dermatological Quality of Life Index, General Health Questionnaire, Eysenck Personality Inventory, and Rosenberg Self-Esteem Scale.

RESULTS

Statistical analysis revealed a significant positive correlation between patients' distress and health-related quality of life. Moreover, the impact of vitiligo on the quality of life was significantly associated with disease variables as well as personality traits and gender. On the other hand, psychological distress was significantly associated with personality traits and gender, but not with disease components.

CONCLUSIONS

Our results indicate that the psychosocial adjustment to the disease is mainly influenced by subjective factors. This observation could imply the need for targeted support interventions in the treatment of vitiligo.

摘要

背景与目的

皮肤病会扭曲身体形象,可能对患者的生活质量和心理社会健康产生负面影响。虽然白癜风不影响身体健康,但可能会造成心理困扰。本研究基于这样一种假设,即特定因素可能对疾病的适应至关重要。

患者与方法

我们调查了216名被诊断患有白癜风的患者与白癜风相关的生活质量和心理困扰,这些患者与人口统计学因素、疾病组成部分和人格特质有关。为此,我们发放了自我填写的问卷,包括皮肤病生活质量指数、一般健康问卷、艾森克人格问卷和罗森伯格自尊量表。

结果

统计分析显示,患者的困扰与健康相关生活质量之间存在显著正相关。此外,白癜风对生活质量的影响与疾病变量、人格特质和性别显著相关。另一方面,心理困扰与人格特质和性别显著相关,但与疾病组成部分无关。

结论

我们的结果表明,对该疾病的心理社会适应主要受主观因素影响。这一观察结果可能意味着在白癜风治疗中需要有针对性的支持干预措施。

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