Evans Simon C, Harrison-Dening Karen, Read Kate
Association for Dementia Studies, University of Worcester, UK.
Dementia UK, UK.
Dementia (London). 2018 Feb;17(2):244-251. doi: 10.1177/1471301216636485. Epub 2016 Mar 14.
There are approximately 150 Admiral Nurses in the UK who work alongside other health and social care professionals to support people with dementia and their family carers. However, the stigma of the disease and the lack of recognition that dementia is a life limiting illness have led to neglect in addressing the end of life challenges. The small in-depth study reported here aimed to add to an extremely limited formal evidence base for the effectiveness of this approach and to develop a greater understanding of the range of knowledge and skills required of them in ensuring they are better able to support families in the later stages of the illness. Findings focus on the experiences of family carers, the impact of performing the Admiral Nurse role and the use of qualitative measures in this setting.
在英国,大约有150名 Admiral Nurses(老年痴呆症护理专家)与其他健康和社会护理专业人员合作,为痴呆症患者及其家庭护理人员提供支持。然而,这种疾病的污名化以及痴呆症是一种限制生命的疾病这一观点缺乏认知,导致在应对临终挑战方面被忽视。本文所报道的小型深入研究旨在为这种方法的有效性增加极为有限的正式证据基础,并加深对他们所需知识和技能范围的理解,以确保他们在疾病后期能更好地支持家庭。研究结果聚焦于家庭护理人员的经历、担任 Admiral Nurse 角色的影响以及在此背景下定性方法的使用。