Gerber Corinna N, Kunz Bettina, van Hedel Hubertus J A
Pediatric Rehab Research Group, Rehabilitation Center for Children and Adolescents, Mühlebergstrasse 104, CH-8910, Affoltern am Albis, Switzerland.
Department of Health Sciences and Technology, ETH Zurich, Rämistrasse 101, CH-8092, Zurich, Switzerland.
J Neuroeng Rehabil. 2016 Mar 23;13:33. doi: 10.1186/s12984-016-0141-x.
Home-based, computer-enhanced therapy of hand and arm function can complement conventional interventions and increase the amount and intensity of training, without interfering too much with family routines. The objective of the present study was to investigate the feasibility and usability of the new portable version of the YouGrabber® system (YouRehab AG, Zurich, Switzerland) in the home setting.
Fifteen families of children (7 girls, mean age: 11.3y) with neuromotor disorders and affected upper limbs participated. They received instructions and took the system home to train for 2 weeks. After returning it, they answered questions about usability, motivation, and their general opinion of the system (Visual Analogue Scale; 0 indicating worst score, 100 indicating best score; ≤30 not satisfied, 31-69 average, ≥70 satisfied). Furthermore, total pure playtime and number of training sessions were quantified. To prove the usability of the system, number and sort of support requests were logged.
The usability of the system was considered average to satisfying (mean 60.1-93.1). The lowest score was given for the occurrence of technical errors. Parents had to motivate their children to start (mean 66.5) and continue (mean 68.5) with the training. But in general, parents estimated the therapeutic benefit as high (mean 73.1) and the whole system as very good (mean 87.4). Children played on average 7 times during the 2 weeks; total pure playtime was 185 ± 45 min. Especially at the beginning of the trial, systems were very error-prone. Fortunately, we, or the company, solved most problems before the patients took the systems home. Nevertheless, 10 of 15 families contacted us at least once because of technical problems.
Despite that the YouGrabber® is a promising and highly accepted training tool for home-use, currently, it is still error-prone, and the requested support exceeds the support that can be provided by clinical therapists. A technically more robust system, combined with additional attractive games, likely results in higher patient motivation and better compliance. This would reduce the need for parents to motivate their children extrinsically and allow for clinical trials to investigate the effectiveness of the system.
ClinicalTrials.gov NCT02368223.
基于家庭的、计算机辅助的手和手臂功能治疗可以补充传统干预措施，并增加训练的量和强度，同时不会过多干扰家庭日常生活。本研究的目的是调查新型便携式YouGrabber®系统（YouRehab AG，瑞士苏黎世）在家庭环境中的可行性和可用性。
15名患有神经运动障碍且上肢受影响的儿童（7名女孩，平均年龄：11.3岁）家庭参与。他们接受指导并将系统带回家训练2周。归还系统后，他们回答了关于可用性、积极性以及对系统的总体看法的问题（视觉模拟量表；0表示最差分数，100表示最佳分数；≤30不满意，31 - 69一般，≥70满意）。此外，对总纯游戏时间和训练次数进行了量化。为证明系统的可用性，记录了支持请求的数量和类别。
系统的可用性被认为是一般到令人满意（平均60.1 - 93.1）。技术错误的发生率得分最低。家长必须激励孩子开始（平均66.5）和继续（平均68.5）训练。但总体而言，家长估计治疗益处很高（平均73.1），整个系统非常好（平均87.4）。孩子们在这2周内平均玩了7次；总纯游戏时间为185±45分钟。特别是在试验开始时，系统非常容易出错。幸运的是，我们或公司在患者将系统带回家之前解决了大多数问题。尽管如此，15个家庭中有10个至少因技术问题联系过我们一次。
尽管YouGrabber®是一种有前景且广受认可的家庭训练工具，但目前它仍然容易出错，且所需的支持超出了临床治疗师所能提供的范围。一个技术上更稳健的系统，结合更多有吸引力的游戏，可能会提高患者的积极性和更好的依从性。这将减少家长外在激励孩子的需求，并允许进行临床试验来研究该系统的有效性。
ClinicalTrials.gov NCT02368223
