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哮喘儿童的健康相关生活质量:自我认知与父母认知

Health-Related Quality of Life of Children with Asthma: Self and Parental Perceptions.

作者信息

Kalyva Efrosini, Eiser Christine, Papathanasiou Aikaterini

机构信息

City College, Department of Psychology, The International Faculty of the University of Sheffield, 24 Proxenou Koromila Street, 546 22, Thessaloniki, Greece.

Department of Psychology, University of Sheffield, Sheffield, UK.

出版信息

Int J Behav Med. 2016 Dec;23(6):730-737. doi: 10.1007/s12529-016-9558-7.

DOI:10.1007/s12529-016-9558-7
PMID:27033504
Abstract

PURPOSE

This study aimed to explore whether age, gender, asthma severity, asthma duration, and exposure to parental smoking were associated with levels of asthma-specific health-related quality of life (HRQoL) among Greek children with asthma and to identify any differences between self- and proxy ratings of asthma-specific HRQoL.

METHOD

One hundred and seventy-three (173) children with asthma (8-12 years old) and their parents completed the Pediatric Quality of Life Asthma Module self- and proxy measures.

RESULTS

Asthma severity, age, and asthma duration explained almost half of the variance in asthma-specific HRQoL scores according to self- and proxy reports. Older male children with more severe asthma who were diagnosed for a longer period of time and had at least one smoking parent reported lower asthma-specific HRQoL according to self- and proxy reports. Although children and their parents seemed to agree in their views of asthma-specific HRQoL, there were significant differences in ratings of specific parameters of asthma-specific HRQoL.

CONCLUSION

This study identifies the factors that account for a significant variance in asthma-specific HRQoL scores according to self- and proxy reports and is among the first to record the effect of parental smoking on children's and parents' perceptions of asthma-specific HRQoL.

摘要

目的

本研究旨在探讨年龄、性别、哮喘严重程度、哮喘病程以及父母吸烟暴露情况是否与希腊哮喘儿童的哮喘特异性健康相关生活质量(HRQoL)水平相关,并确定哮喘特异性HRQoL的自我评分与代理评分之间是否存在差异。

方法

173名8至12岁的哮喘儿童及其父母完成了儿童哮喘生活质量模块的自我评估和代理评估。

结果

根据自我报告和代理报告,哮喘严重程度、年龄和哮喘病程解释了哮喘特异性HRQoL得分中近一半的差异。根据自我报告和代理报告,年龄较大、哮喘较严重、病程较长且父母至少有一人吸烟的男性儿童报告的哮喘特异性HRQoL较低。尽管儿童及其父母在哮喘特异性HRQoL的看法上似乎一致,但在哮喘特异性HRQoL特定参数的评分上存在显著差异。

结论

本研究确定了根据自我报告和代理报告导致哮喘特异性HRQoL得分存在显著差异的因素,并且是首批记录父母吸烟对儿童及其父母对哮喘特异性HRQoL认知影响的研究之一。

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J Diabetes Complications. 2016 Apr;30(3):482-7. doi: 10.1016/j.jdiacomp.2015.12.021. Epub 2015 Dec 24.
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Quality of life in adolescents with asthma, during the transition period from child to adult.从儿童到成人过渡阶段哮喘青少年的生活质量。
Clin Respir J. 2011 Oct;5(4):195-202. doi: 10.1111/j.1752-699X.2010.00218.x. Epub 2010 Jul 15.
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Gender differences in perception of dyspnea, assessment of control, and quality of life in asthma.
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哮喘患者中呼吸困难感知、控制评估及生活质量方面的性别差异。
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Level of parent-asthmatic child agreement on health-related quality of life.患哮喘儿童的父母与孩子在健康相关生活质量方面的一致性水平。
J Asthma. 2011 Apr;48(3):286-97. doi: 10.3109/02770903.2011.555031.
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Assessing health-related quality of life in European children and adolescents.评估欧洲儿童和青少年的健康相关生活质量。
Neurosci Biobehav Rev. 2011 Aug;35(8):1752-6. doi: 10.1016/j.neubiorev.2011.02.012. Epub 2011 Mar 2.
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Asthma that is not well-controlled is associated with increased healthcare utilization and decreased quality of life.控制不佳的哮喘与医疗资源利用增加及生活质量下降相关。
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Clin Pediatr (Phila). 2010 Oct;49(10):931-7. doi: 10.1177/0009922809357339. Epub 2010 Aug 19.
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