Stjernswärd Sigrid, Hansson Lars
Department of Health Sciences, Lund University, Lund, Sweden.
Health Soc Care Community. 2017 Mar;25(2):700-709. doi: 10.1111/hsc.12360. Epub 2016 May 17.
Mental health problems affect the patients and their families, who may also need therapeutic interventions. Mindfulness interventions have shown beneficial health effects for clinical and healthy populations. A web-based mindfulness intervention was tailored to address families' needs of support and tested in a pilot intervention study. The aim of this study was to explore the participants' experiences of using an 8-week web-based mindfulness programme in terms of user value and usability. Qualitative semi-structured interviews were carried out over the phone (Spring 2015, Sweden) with 15 randomly selected participants after the 3-month follow-up as part of the pilot study. Data were also collected through usability surveys online post intervention and at the 3-month follow-up. Qualitative data were analysed with content analysis and quantitative data with descriptive statistics. The analysis of the interviews resulted in four categories describing the participants' experiences of the programme's usability and value: A valuable and flexible tool that requires time and discipline, New perspective and coping strategies for an enhanced well-being, I'm important too - my limits, my responsibility, and Taming the inner critic. The programme's usability was satisfactory and largely corroborated by the surveys. The programme was experienced as a valuable tool to cope with stress in both private and professional contexts, making it a viable option to support families living with mental health problems. Time for self-care, a widened perspective, a less judgmental and more accepting attitude, deterring automatic reactions and setting limits helped the participants to deal with their situation and health. The programme's ease and flexibility of use were major advantages, although the training requires discipline. Motivators and barriers to use were illuminated, which should be considered in the development of further online services and study designs.
心理健康问题会影响患者及其家人，他们可能也需要治疗干预。正念干预已显示出对临床人群和健康人群有益的健康效果。一项基于网络的正念干预措施是为满足家庭的支持需求而量身定制的，并在一项试点干预研究中进行了测试。本研究的目的是从用户价值和可用性方面探索参与者使用为期8周的基于网络的正念计划的体验。作为试点研究的一部分，在3个月随访后，于2015年春季在瑞典通过电话对15名随机选择的参与者进行了定性半结构化访谈。还通过干预后和3个月随访时的在线可用性调查收集了数据。定性数据采用内容分析法进行分析，定量数据采用描述性统计法进行分析。访谈分析得出了四类描述参与者对该计划可用性和价值体验的内容：一种需要时间和自律的有价值且灵活的工具、增强幸福感的新视角和应对策略、我也很重要——我的极限、我的责任以及驯服内心的批评者。该计划的可用性令人满意，调查结果在很大程度上证实了这一点。该计划被视为在私人和职业环境中应对压力的有价值工具，使其成为支持有心理健康问题家庭的可行选择。自我护理的时间、更广阔的视角、更少评判和更包容的态度、抑制自动反应以及设定界限帮助参与者应对自身状况和健康问题。该计划使用起来轻松且灵活是其主要优点，尽管训练需要自律。研究揭示了使用的动机和障碍，在进一步开发在线服务和研究设计时应予以考虑。
