Stjernswärd Sigrid, Hansson Lars
Department of Health Sciences, Lund University, Box 157, 221 50 Lund, Sweden.
Mindfulness (N Y). 2017;8(3):751-764. doi: 10.1007/s12671-016-0653-2. Epub 2016 Dec 8.
Families living with mental illness express needs of support and experiences of burden that may affect their own health detrimentally and hence also their ability to support the patient. Mindfulness-based interventions have shown beneficial health effects in both clinical and healthy populations. The aim of the current study was to explore the effectiveness and usability of a web-based mindfulness program for families living with mental illness, which was first tested in a feasibility study. The study was designed as a randomized controlled trial with an experiment group and a wait-list control group with assessments on primary and secondary outcomes at baseline, post-intervention, and at a 3-month follow-up. Significant positive improvements in mindfulness and self-compassion, and significant decreases in perceived stress and in certain dimensions of caregiver burden were found, with good program usability. Easily accessible mindfulness-based interventions may be useful in addressing caregivers' needs of support and in preventing further ill health in caregivers. Further studies are needed, among others, to further customize interventions and to investigate the cost-effectiveness of such programs.
患有精神疾病的家庭表达了他们对支持的需求以及负担的经历，这些可能会对他们自身的健康产生不利影响，进而也影响他们支持患者的能力。基于正念的干预措施已在临床人群和健康人群中显示出有益的健康效果。本研究的目的是探讨一个针对患有精神疾病家庭的基于网络的正念项目的有效性和可用性，该项目首先在一项可行性研究中进行了测试。该研究设计为随机对照试验，设有实验组和等待名单对照组，在基线、干预后和3个月随访时对主要和次要结局进行评估。结果发现，正念和自我同情有显著的积极改善，感知压力和照顾者负担的某些维度有显著下降，且项目可用性良好。易于获得的基于正念的干预措施可能有助于满足照顾者的支持需求，并预防照顾者进一步的健康问题。还需要进一步的研究，包括进一步定制干预措施以及调查此类项目的成本效益。
