Pillemer Francesca, Price Rebecca Anhang, Paone Suzanne, Martich G Daniel, Albert Steve, Haidari Leila, Updike Glenn, Rudin Robert, Liu Darren, Mehrotra Ateev
RAND Corporation, Arlington, Virginia, and Boston, Massachusetts, United States of America.
UPMC Health System, Pittsburgh, Pennsylvania, United States of America.
PLoS One. 2016 Jun 23;11(6):e0154743. doi: 10.1371/journal.pone.0154743. eCollection 2016.
An important focus for meaningful use criteria is to engage patients in their care by allowing them online access to their health information, including test results. There has been little evaluation of such initiatives. Using a mixed methods analysis of electronic health record data, surveys, and qualitative interviews, we examined the impact of allowing patients to view their test results via patient portal in one large health system. Quantitative data were collected for new users and all users of the patient portal. Qualitative interviews occurred with patients who had received an HbA1c or abnormal Pap result. Survey participants were active patient portal users. Our main measures were patient portal usage, factors associated with viewing test results and utilizing care, and patient and provider experiences with patient portal and direct release. Usage data show 80% of all patient portal users viewed test results during the year. Of survey respondents, 82.7% noted test results to be a very useful feature and 70% agreed that patient portal has made their provider more accessible to them. Interviewed patients reported feeling they should have direct access to test results and identified the ability to monitor results over time and prepare prior to communicating with a provider as benefits. In interviews, both patients and physicians reported instances of test results leading to unnecessary patient anxiety. Both groups noted the benefits of results released with provider interpretation. Quantitative data showed patient utilization to increase with viewing test results online, but this effect is mitigated when results are manually released by physicians. Our findings demonstrate that patient portal access to test results was highly valued by patients and appeared to increase patient engagement. However, it may lead to patient anxiety and increase rates of patient visits. We discuss how such unintended consequences can be addressed and larger implications for meaningful use criteria.
有意义使用标准的一个重要关注点是通过让患者在线访问其健康信息(包括检测结果)来使其参与自身护理。对此类举措的评估很少。我们使用电子健康记录数据、调查和定性访谈的混合方法分析,研究了在一个大型医疗系统中允许患者通过患者门户查看其检测结果的影响。收集了患者门户新用户和所有用户的定量数据。对收到糖化血红蛋白(HbA1c)或巴氏涂片异常结果的患者进行了定性访谈。调查参与者是活跃的患者门户用户。我们的主要衡量指标包括患者门户的使用情况、与查看检测结果及利用护理相关的因素,以及患者和提供者对患者门户及直接发布检测结果的体验。使用数据显示,在这一年中,80%的患者门户用户查看了检测结果。在调查受访者中,82.7%指出检测结果是一项非常有用的功能,70%同意患者门户使他们更容易联系到自己的医疗服务提供者。接受访谈的患者表示,他们觉得自己应该能够直接获取检测结果,并认为能够长期监测结果以及在与医疗服务提供者沟通之前做好准备是有益的。在访谈中,患者和医生都报告了检测结果导致患者不必要焦虑的情况。两组都提到了附有医疗服务提供者解读的检测结果所带来的好处。定量数据表明,患者在线查看检测结果后利用率有所提高,但当医生手动发布结果时,这种效果会减弱。我们的研究结果表明,患者通过门户访问检测结果受到患者高度重视,并且似乎提高了患者参与度。然而,这可能会导致患者焦虑并增加患者就诊率。我们讨论了如何应对这些意外后果以及对有意义使用标准的更大影响。