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平板电脑助力更好的自我管理和有意义的活动?开发一项以人为本的项目,通过使用手持触摸屏设备来支持轻度痴呆患者及其照顾者。

Better self-management and meaningful activities thanks to tablets? Development of a person-centered program to support people with mild dementia and their carers through use of hand-held touch screen devices.

作者信息

Kerkhof Yvonne J F, Graff Maud J L, Bergsma Ad, de Vocht Hilde H M, Dröes Rose-Marie

机构信息

Center for Nursing Research,Saxion University of Applied Sciences,Deventer/Enschede,the Netherlands.

Donders Institute for Brain, Cognition and behaviour,Scientific Institute for Quality of Healthcare,Radboud Alzheimer Center,Radboud University Medical Center,Nijmegen,the Netherlands.

出版信息

Int Psychogeriatr. 2016 Nov;28(11):1917-1929. doi: 10.1017/S1041610216001071. Epub 2016 Jul 18.

DOI:10.1017/S1041610216001071
PMID:27425002
Abstract

BACKGROUND

To offer good support to people with dementia and their carers in an aging and Internet society the deployment of hand-held touch screen devices, better known as tablets, and its applications (apps) can be viable and desirable. However, at the moment it is not clear which apps are usable for supporting people with dementia in daily life. Also, little is known about how people with dementia can be coached to learn to use a tablet and its apps.

METHODS

A person-centered program, with tools and training, will be developed that aims to support people with mild dementia and their (in)formal carers in how to use the tablet for self-management and meaningful activities. The program will be developed in accordance with the Medical Research Council's (MRC) framework for developing and evaluating complex interventions and the study will cover the following phases: a preclinical or theoretical (0) phase; a modeling phase (I) and the exploratory trial phase (II). The users (people with dementia and their carers) will be involved intensively during all these phases, by means of individual interviews, workshops, focus groups, and case studies.

DISCUSSION

The iterative process inherent to this framework makes it possible to develop a user-oriented intervention, in this case a person-centered program, for the use of tablets in dementia care. Preparatory work will be done to perform a methodologically sound randomized controlled trial (RCT) in the near future, which aims to investigate the contribution of this person-centered program for tablet use to the quality of life of people with dementia and their carers.

摘要

背景

在老龄化和互联网社会中,为痴呆症患者及其护理人员提供良好支持,部署手持触摸屏设备(即平板电脑)及其应用程序(应用)可能是可行且理想的。然而,目前尚不清楚哪些应用可用于在日常生活中支持痴呆症患者。此外,对于如何指导痴呆症患者学习使用平板电脑及其应用也知之甚少。

方法

将开发一个以个人为中心的项目,配备工具和培训,旨在支持轻度痴呆症患者及其(非)正式护理人员如何使用平板电脑进行自我管理和开展有意义的活动。该项目将根据医学研究理事会(MRC)开发和评估复杂干预措施的框架进行开发,研究将涵盖以下阶段:临床前或理论(0)阶段;建模阶段(I)和探索性试验阶段(II)。在所有这些阶段,将通过个人访谈、工作坊、焦点小组和案例研究等方式让用户(痴呆症患者及其护理人员)深度参与。

讨论

该框架固有的迭代过程使得开发一种以用户为导向的干预措施成为可能,在这种情况下是一个以个人为中心的项目,用于在痴呆症护理中使用平板电脑。将做好准备工作,以便在不久的将来进行一项方法严谨的随机对照试验(RCT),该试验旨在调查这个以个人为中心的平板电脑使用项目对痴呆症患者及其护理人员生活质量的贡献。

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