South Bay Latino Research Center, Graduate School of Public Health, San Diego State University, San Diego, CA.
Feinberg School of Medicine, Department of Preventive Medicine, Northwestern University, IL.
Ethn Dis. 2016 Jul 21;26(3):435-42. doi: 10.18865/ed.26.3.435.
This study examined perceived satisfaction among Hispanic/Latino individuals who participated in a baseline examination for the Hispanic Community Health Study/Study of Latinos (HCHS/SOL), a large cohort study of 16,415 adults living in four selected communities.
An estimated 22% (n= 3,584) of participants completed a questionnaire regarding satisfaction with staff attention, the overall experience during the study examination, and the influence of the informed consent digital video disc (DVD).
The majority of participants who completed the questionnaire expressed overall satisfaction with the study. Most participants reported that staff were friendly, courteous and respectful and study test procedures were clearly explained. Participants who preferred to complete the interview in Spanish felt that the informed consent DVD positively influenced their ability to make an informed decision to enroll in the study. Participants who preferred to complete the interview in English tended to report that the baseline examination was longer than expected compared with participants who completed the interview in Spanish.
Results demonstrate that culturally and linguistically trained staff and the use of the study's informed consent DVD were effective in explaining study procedures and positively influenced decisions to participate in the HCHS/SOL study. These results can inform recruitment and enrollment strategies for future participation of minority groups into longitudinal cohort studies.
本研究调查了参加西班牙裔美国人社区健康研究/拉丁裔研究（HCHS/SOL）基线检查的西班牙裔/拉丁裔个体的满意度，这是一项针对四个选定社区的 16415 名成年人的大型队列研究。
约 22%（n=3584）的参与者完成了一份关于对工作人员关注、研究检查期间的总体体验以及知情同意数字视频光盘（DVD）影响的满意度问卷。
完成问卷的大多数参与者对研究表示总体满意。大多数参与者报告说，工作人员友好、礼貌和尊重，研究测试程序解释得很清楚。更喜欢用西班牙语完成访谈的参与者认为知情同意 DVD 积极影响了他们做出知情决定参加研究的能力。与用西班牙语完成访谈的参与者相比，更喜欢用英语完成访谈的参与者往往报告说基线检查比预期的时间长。
结果表明，受过文化和语言培训的工作人员以及使用研究的知情同意 DVD 能够有效地解释研究程序，并积极影响参与 HCHS/SOL 研究的决定。这些结果可以为未来少数民族参与纵向队列研究的招募和入组策略提供信息。
