Knafl Kathleen A, Havill Nancy L, Leeman Jennifer, Fleming Louise, Crandell Jamie L, Sandelowski Margarete
1 The University of North Carolina at Chapel Hill, NC, USA.
West J Nurs Res. 2017 May;39(5):690-723. doi: 10.1177/0193945916664700. Epub 2016 Sep 5.
Recognizing the bi-directional relationship between family functioning and child well-being in the context of childhood chronic conditions, researchers have tested family-focused interventions aimed at promoting both child and family well-being through improving the family's condition management capacity. Based on a sample of 70 interventions for families in which there was a child with a chronic physical condition, this analysis examined the nature of family engagement in the interventions. Data were extracted from the intervention reports using a standardized template; conventional content analysis was used to describe family engagement. Interventions varied in focus, structure, and level of family engagement. Investigators most often sought to improve condition control or management, with parent engagement focused on improving capacity to manage the treatment regimen. Few investigators addressed capacity building in the context of family functioning. Recommendations are made for reporting standards for family-focused interventions and for enhancing the family systems grounding of interventions.
认识到在儿童慢性病背景下家庭功能与儿童福祉之间的双向关系后，研究人员对以家庭为重点的干预措施进行了测试，旨在通过提高家庭的病情管理能力来促进儿童和家庭的福祉。基于对70项针对有慢性身体疾病儿童家庭的干预措施的样本，该分析考察了家庭在干预措施中的参与性质。数据使用标准化模板从干预报告中提取；采用传统内容分析法来描述家庭参与情况。干预措施在重点、结构和家庭参与程度方面各不相同。研究人员最常寻求改善病情控制或管理，家长参与主要集中在提高管理治疗方案的能力上。很少有研究人员探讨家庭功能背景下的能力建设。针对以家庭为重点的干预措施的报告标准以及加强干预措施的家庭系统基础提出了建议。
