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印度城市地区乳腺癌幸存者在肿瘤治疗环境中的经历:定性研究结果

Experiences of Breast Cancer Survivors with Oncology Settings in Urban India: Qualitative Findings.

作者信息

Barthakur Michelle S, Sharma Mahendra P, Chaturvedi Santosh K, Manjunath Suraj K

机构信息

Manukau Community Mental Health Centre, Counties Manukau District Health Board, Auckland, New Zealand ; Department of Clinical Psychology, NIMHANS, Bangalore, India.

Department of Clinical Psychology, NIMHANS, Bangalore, India.

出版信息

Indian J Surg Oncol. 2016 Dec;7(4):392-396. doi: 10.1007/s13193-016-0519-z. Epub 2016 Apr 27.

DOI:10.1007/s13193-016-0519-z
PMID:27872525
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5097753/
Abstract

The experience of diagnosis and treatment of cancer leads to significant changes within an individual. In the course of survivorship trajectory, very often cancer survivors are left with the sense, improvements could be done to enhance the quality of cancer care. This article focuses on experiences of breast cancer survivors with oncology setting in urban India. Data was collected from 15 women in South and East India using in-depth interview method. Qualitative interview data was analysed using descriptive phenomenology method. Areas of importance that emerged broadly included informational and emotional categories. Findings reveal quality of cancer care in India can be improved through developing an orientation towards patient-centred style rather than doctor/disease centred approach which has major influence on physical and mental health outcomes. This would require further research and increased emphasis on training of medical as well as paramedical professionals.

摘要

癌症的诊断和治疗经历会给个体带来重大变化。在生存轨迹过程中,癌症幸存者常常会觉得,在提高癌症护理质量方面仍有改进空间。本文聚焦于印度城市地区乳腺癌幸存者在肿瘤治疗环境中的经历。通过深度访谈法,从印度南部和东部的15名女性那里收集了数据。采用描述性现象学方法对定性访谈数据进行了分析。广泛出现的重要领域包括信息和情感类别。研究结果表明,印度的癌症护理质量可以通过发展以患者为中心的模式来提高,而不是以医生/疾病为中心的方法,因为后者对身心健康结果有重大影响。这需要进一步研究,并更加重视对医学以及辅助医疗专业人员的培训。

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本文引用的文献

1
Relationships between perceived diagnostic disclosure, patient characteristics, psychological distress and illness perceptions in Indian cancer patients.印度癌症患者感知的诊断披露、患者特征、心理困扰和疾病认知之间的关系。
Psychooncology. 2013 Jun;22(6):1375-80. doi: 10.1002/pon.3149. Epub 2012 Aug 28.
2
Participation in decision making regarding type of surgery and treatment-related satisfaction in North Indian women with early breast cancer.北印度早期乳腺癌女性参与手术类型决策及与治疗相关的满意度
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3
A comparative study of coping skills and body image: Mastectomized vs. lumpectomized patients with breast carcinoma.应对技能与身体意象的对比研究:乳腺癌乳房切除术与肿瘤切除术患者。
Indian J Psychiatry. 2005 Oct;47(4):198-204. doi: 10.4103/0019-5545.43051.
4
Communication with relatives and collusion in palliative care: a cross-cultural perspective.姑息治疗中与亲属的沟通及串通:跨文化视角
Indian J Palliat Care. 2009 Jan;15(1):2-9. doi: 10.4103/0973-1075.53485.
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Psychosocial disorders in women undergoing postoperative radiation and chemotherapy for breast cancer in India.
Indian J Cancer. 2010 Jul-Sep;47(3):296-303. doi: 10.4103/0019-509X.64729.
6
Quality of life among younger women with breast cancer: study from a tertiary cancer institute in south India.印度南部一家三级癌症研究所对年轻乳腺癌女性生活质量的研究。
Indian J Cancer. 2010 Apr-Jun;47(2):142-7. doi: 10.4103/0019-509X.63005.
7
Patients' experiences with navigation for cancer care.患者对癌症治疗导航的体验。
Patient Educ Couns. 2010 Aug;80(2):241-7. doi: 10.1016/j.pec.2009.10.024. Epub 2009 Dec 16.
8
An evidence base for patient-centered cancer care: a meta-analysis of studies of observed communication between cancer specialists and their patients.以患者为中心的癌症护理的循证基础:对癌症专家与患者之间观察到的沟通的研究进行的荟萃分析。
Patient Educ Couns. 2009 Dec;77(3):379-83. doi: 10.1016/j.pec.2009.09.015.
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The effect of peer counseling on quality of life following diagnosis of breast cancer: an observational study.同伴咨询对乳腺癌诊断后生活质量的影响:一项观察性研究。
Psychooncology. 2006 Nov;15(11):1014-22. doi: 10.1002/pon.1037.
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Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).癌症患者的信息需求与信息来源:一项研究的系统综述(1980 - 2003年)
Patient Educ Couns. 2005 Jun;57(3):250-61. doi: 10.1016/j.pec.2004.06.006.