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供者和受者对活体肾捐赠中双方关系的看法:定性研究的主题综合分析。

Donor and Recipient Views on Their Relationship in Living Kidney Donation: Thematic Synthesis of Qualitative Studies.

机构信息

Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia; School of Psychology, The University of Sydney, Sydney, NSW, Australia.

School of Psychology, The University of Sydney, Sydney, NSW, Australia; Psycho-oncology Co-operative Research Group, The University of Sydney, Sydney, NSW, Australia; Centre for Medical Psychology & Evidence-based Decision-making, The University of Sydney, Sydney, NSW, Australia.

出版信息

Am J Kidney Dis. 2017 May;69(5):602-616. doi: 10.1053/j.ajkd.2016.09.017. Epub 2016 Nov 23.

DOI:10.1053/j.ajkd.2016.09.017
PMID:27889296
Abstract

BACKGROUND

Many donors and recipients report an improved relationship after transplantation; however, tension, neglect, guilt, and proprietorial concern over the recipient can impede donor and recipient well-being and outcomes. We aimed to describe donor and recipient expectations and experiences of their relationship in the context of living kidney donation.

STUDY DESIGN

Thematic synthesis of qualitative studies.

SETTING & POPULATION: Living kidney donors and recipients.

SEARCH STRATEGY & SOURCES: Electronic databases were searched to October 2015.

ANALYTICAL APPROACH

Thematic synthesis.

RESULTS

From 40 studies involving 1,440 participants (889 donors and 551 recipients) from 13 countries, we identified 6 themes. "Burden of obligation" described the recipient's perpetual sense of duty to demonstrate gratitude to the donor. "Earning acceptance" was the expectation that donation would restore relationships. "Developing a unique connection" reflected the inexplicable bond that donor-recipient dyads developed postdonation. "Desiring attention" was expressed by donors who wanted recognition for the act of donation and were envious and resentful of the attention the recipient received. "Retaining kidney ownership" reflected the donor's inclination to ensure that the recipient protected "their" kidney. "Enhancing social participation" encompassed relieving both the caregiver from the constraints of dialysis and the recipient from increased involvement and contribution in family life.

LIMITATIONS

Non-English articles were excluded.

CONCLUSIONS

Living kidney donation can strengthen donor-recipient relationships but may trigger or exacerbate unresolved angst, tension, jealousy, and resentment. Facilitating access to pre- and posttransplantation psychological support that addresses potential relationship changes may help donors and recipients better adjust to changes in the relationship dynamics, which in turn may contribute to improved psychosocial and transplantation outcomes following living kidney donation.

摘要

背景

许多供者和受者在移植后报告说关系得到了改善;然而,紧张、忽视、内疚和对受者的占有欲会妨碍供者和受者的健康和结果。我们旨在描述活体肾捐献者和受者在活体肾捐献背景下对其关系的期望和体验。

研究设计

定性研究的主题综合。

研究场所和人群

活体肾供者和受者。

检索策略和来源

电子数据库检索至 2015 年 10 月。

分析方法

主题综合。

结果

从 13 个国家的 40 项研究中,我们共纳入了 1440 名参与者(889 名供者和 551 名受者),识别出了 6 个主题。“义务的负担”描述了受者对向供者表示感激的永久责任感。“获得认可”是指捐赠将恢复关系的期望。“建立独特的联系”反映了供者-受者配对在捐赠后发展起来的无法解释的纽带。“渴望关注”是指供者希望为捐赠行为得到认可,同时对受者获得的关注感到羡慕和怨恨。“保留肾脏所有权”反映了供者确保受者保护“他们”的肾脏的倾向。“增强社会参与”包括使照顾者从透析的限制中解脱出来,使受者从家庭生活中增加的参与和贡献中解脱出来。

局限性

排除了非英文文章。

结论

活体肾捐献可以加强供者-受者关系,但可能引发或加剧未解决的焦虑、紧张、嫉妒和怨恨。促进获得移植前和移植后的心理支持,以解决潜在的关系变化,可能有助于供者和受者更好地适应关系动态的变化,这反过来可能有助于改善活体肾捐献后的心理社会和移植结果。

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