Griffiths Catrin, Guest Ella, White Paul, Gaskin Emma, Rumsey Nichola, Pleat Jonathan, Harcourt Diana
From the *Centre for Appearance Research (CAR), University of the West of England, Bristol, United Kingdom; †Department of Engineering Design and Mathematics, University of the West of England, Bristol, United Kingdom; and ‡Department of Plastic Surgery, Southmead Hospital, North Bristol NHS Trust, United Kingdom.
J Burn Care Res. 2017 Mar/Apr;38(2):e521-e545. doi: 10.1097/BCR.0000000000000474.
Patient-reported outcome measures (PROMs) are vital for evaluating patient needs and therapeutic progress. This review aimed to identify the PROMs used in adult burn care and establish their quality. Computerized bibliographic searches of Psychinfo, Social Sciences Citation Index, Cinahl, Psycharticles, AMED, Medline, and HAPI were used to find English-language articles using English-language PROMs from January 2001 to September 2016. Psychometric quality assessment of the PROMs was conducted. A total of 117 studies achieved the entry criteria and reported using 77 different PROMs (71 generic and 6 burn-specific). Overall, the psychometric quality of the PROMs was low; only 17 (13 generic and 4 burn-specific) had psychometric evidence appropriate to adults with burn injuries completing an English language version of the PROM. Although this review identified a number of generic and burn-specific PROMs that have some psychometric evidence with adult burn patients, research is still needed to further examine these preexisting measures and validate them in different languages. This will enable researchers and clinicians to better understand the potential impact of a burn injury on adults, and evaluate the effectiveness of therapeutic interventions.
患者报告结局测量（PROMs）对于评估患者需求和治疗进展至关重要。本综述旨在确定成人烧伤护理中使用的PROMs并评估其质量。通过对Psychinfo、社会科学引文索引、护理学与健康领域数据库（Cinahl）、Psycharticles、联合和补充医学数据库（AMED）、医学索引数据库（Medline）和烧伤与塑性外科学数据库（HAPI）进行计算机化书目检索，以查找2001年1月至2016年9月期间使用英文PROMs的英文文章。对PROMs进行了心理测量学质量评估。共有117项研究符合纳入标准，并报告使用了77种不同的PROMs（71种通用型和6种烧伤特异性）。总体而言，PROMs的心理测量学质量较低；只有17种（13种通用型和4种烧伤特异性）有适合成年烧伤患者完成英文版本PROM的心理测量学证据。尽管本综述确定了一些通用型和烧伤特异性PROMs，它们对成年烧伤患者有一些心理测量学证据，但仍需要进一步研究这些现有的测量方法，并在不同语言中进行验证。这将使研究人员和临床医生能够更好地了解烧伤对成年人的潜在影响，并评估治疗干预的有效性。
