Morgan Susan E, Occa Aurora, Potter JoNell, Mouton Ashton, Peter Megan E
a School of Communication , University of Miami , Coral Gables , Florida , USA.
b Miller School of Medicine , University of Miami , Miami , Florida , USA.
J Health Commun. 2017 Feb;22(2):95-101. doi: 10.1080/10810730.2016.1256356. Epub 2017 Jan 13.
Medical and research professionals who discuss clinical trials and research studies with potential participants face an often daunting challenge, particularly when recruiting from minority and underserved populations. This study reports on findings from a focus group study of 63 research coordinators, study nurses, professional recruiters, and other professionals in Indianapolis, IN and Miami, FL who work to recruit from minority and underserved populations. These professionals discussed the importance of creating a sense of connection with potential participants as part of the recruitment and retention process. Building a relationship, however fleeting, involved a number of concrete behaviors, including listening to personal information, expressing empathy, and then providing reciprocal self-disclosures; having repeated contact, usually by working in the same environment over an extended period of time; demonstrating respect through politeness and the use of honorifics; going the extra mile for participants; offering flexibility in scheduling follow-up appointments; and creating a sense of personal and community trust by being truthful. The implications of these findings for clinical trial and research study accrual are discussed.
与潜在参与者讨论临床试验和研究的医学及研究专业人员面临着一项常常令人望而生畏的挑战，尤其是在从少数族裔和服务不足人群中招募参与者时。本研究报告了对印第安纳波利斯市和佛罗里达州迈阿密市的63名研究协调员、研究护士、专业招募人员及其他致力于从少数族裔和服务不足人群中招募参与者的专业人员进行的焦点小组研究结果。这些专业人员讨论了在招募和留住参与者过程中，与潜在参与者建立联系感的重要性。建立关系，无论多么短暂，都涉及一些具体行为，包括倾听个人信息、表达同理心，然后进行相互的自我表露；通常通过在同一环境中长时间工作进行反复接触；通过礼貌和使用敬语来表达尊重；为参与者多做额外的努力；在安排随访预约时提供灵活性；以及通过诚实来营造个人和社区信任的感觉。本文还讨论了这些发现对临床试验和研究招募的影响。
