Parravicini Elvira
Department of Pediatrics, College of Physicians and Surgeons, Columbia University, New York City, New York, USA.
Curr Opin Pediatr. 2017 Apr;29(2):135-140. doi: 10.1097/MOP.0000000000000464.
A significant number of newborns are affected by life-limiting or life-threatening conditions. When prolongation of survival is no longer a goal, or prognosis is uncertain, a plan of care focused on the infant's comfort is essential. The aim of this article is to review the most recent and relevant literature regarding neonatal palliative care (NPC).
A variety of perinatal and NPC programs are described, but most programs focus exclusively on end-of-life care. Moreover, there is a great need to standardize practices and obtain follow-up quality measures.Guidelines to address infants' basic needs, to achieve a state of comfort, are proposed. A multidisciplinary team addressing the infants' medical and nonmedical needs, parental grieving process, and providers' distress is recommended.
NPC is a unique multidisciplinary approach for the care of newborns affected by life-limiting or complex medical conditions with uncertain prognosis. Standardized guidelines should be implemented with the goal of achieving a state of comfort for newborns throughout the course of illness. Further studies are warranted to assess whether NPC effectively promotes newborns' comfort and parents and providers' satisfaction.
大量新生儿受到危及生命或限制生命的疾病影响。当延长生存期不再是目标，或预后不确定时，以婴儿舒适度为重点的护理计划至关重要。本文旨在综述有关新生儿姑息治疗（NPC）的最新相关文献。
描述了各种围产期和NPC项目，但大多数项目仅专注于临终护理。此外，非常需要规范实践并获取后续质量指标。提出了满足婴儿基本需求以达到舒适状态的指南。建议组建一个多学科团队来满足婴儿的医疗和非医疗需求、父母的悲伤过程以及医护人员的困扰。
NPC是一种独特的多学科方法，用于照顾受预后不确定的限制生命或复杂医疗状况影响的新生儿。应实施标准化指南，目标是在疾病全过程中为新生儿实现舒适状态。有必要进行进一步研究，以评估NPC是否能有效提升新生儿的舒适度以及父母和医护人员的满意度。
