通过标准化新生儿舒适护理计划对患有危及生命疾病的新生儿的父母进行舒适度评估。
Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program.
作者信息
Parravicini E, Daho' M, Foe G, Steinwurtzel R, Byrne M
机构信息
Department of Pediatrics, Columbia University, New York, NY, USA.
Department of Psychology, Sacro Cuore University of Milan, Milan, Italy.
出版信息
J Perinatol. 2018 Feb;38(2):142-147. doi: 10.1038/jp.2017.160. Epub 2017 Oct 19.
OBJECTIVE
To assess the perception of parents concerning the state of comfort maintained in their infants born with life-limiting conditions and treated by a standardized neonatal comfort care program.
STUDY DESIGN
Participants were parents (n=35 families) who elected comfort care for their newborns diagnosed with life-limiting conditions. Standardized comfort measures including family/infant bonding, warmth, nutrition/hydration and pain/discomfort management were provided to all infants. Parents consented to receive a questionnaire with quantitative response options and open-ended questions.
RESULTS
Forty-two questionnaires (26 from mothers and 16 from fathers) were collected and analyzed. Most parents reported that their child was treated with respect, in a caring, peaceful and non-invasive environment. To the question 'Do you think that overall your baby received comfort' mode response was 'always'.
CONCLUSION
Parents of infants with life-limiting conditions perceive that their babies experience comfort as a result of the care provided by the standardized Neonatal Comfort Care Program.
目的
评估父母对于患有危及生命疾病并接受标准化新生儿舒适护理计划治疗的婴儿的舒适状态的看法。
研究设计
参与者为选择为被诊断患有危及生命疾病的新生儿进行舒适护理的父母（35个家庭）。为所有婴儿提供包括家庭/婴儿情感联结、保暖、营养/水合作用以及疼痛/不适管理在内的标准化舒适护理措施。父母同意接受一份包含定量回答选项和开放式问题的问卷。
结果
收集并分析了42份问卷（26份来自母亲，16份来自父亲）。大多数父母报告称他们的孩子在一个充满关怀、宁静且非侵入性的环境中受到了尊重对待。对于“你认为总体而言你的宝宝是否得到了舒适护理”这一问题，多数回答是“一直都有”。
结论
患有危及生命疾病的婴儿的父母认为，由于标准化新生儿舒适护理计划所提供的护理，他们的宝宝体验到了舒适。
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