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智力残疾中的哮喘:我们对患者的治疗是否恰当?

Asthma in intellectual disability: are we managing our patients appropriately?

作者信息

Davis Sharon

机构信息

Faculty of Pharmacy and Woolcock Institute of Medical Research, University of Sydney, Sydney, New South Wales, Australia.

出版信息

Breathe (Sheff). 2016 Dec;12(4):310-317. doi: 10.1183/20734735.014716.

Abstract

UNLABELLED

People with intellectual disability are a vulnerable group of people with asthma that has, to date, largely been ignored in the medical literature. Although guidelines for medication management for people with intellectual disability suggest asthma is treated as for other populations, there are special considerations that should be taken into account when managing asthma in this group. Due to their cognitive impairment as well as comorbidities, they are likely to require support with asthma self-management, including inhaler use. Their varying degrees of autonomy mean that there is often a need to provide education and information to both the person and their caregivers.

EDUCATIONAL AIMS

To understand general principles of health of people with intellectual disability and how this affects the healthcare professional's approach to asthma management.To understand how intellectual disability affects cognition, autonomy and communication, and therefore the ability of a person to self-manage asthma.To recognise ways of mitigating respiratory disease risk in people with intellectual disability.To describe ways for healthcare professionals to support people with intellectual disability and their caregivers in asthma management.

摘要

未标注

智障人士是哮喘患者中的弱势群体,迄今为止,医学文献在很大程度上忽略了这一群体。尽管针对智障人士的药物管理指南建议,哮喘的治疗方式与其他人群相同,但在管理该群体的哮喘时,仍有一些特殊因素需要考虑。由于他们存在认知障碍以及合并症,可能需要在哮喘自我管理方面获得支持,包括吸入器的使用。他们不同程度的自主性意味着通常需要向患者及其护理人员提供教育和信息。

教育目标

了解智障人士的一般健康原则,以及这如何影响医疗保健专业人员对哮喘管理的方法。了解智障如何影响认知、自主性和沟通,进而影响一个人自我管理哮喘的能力。认识减轻智障人士呼吸道疾病风险的方法。描述医疗保健专业人员在哮喘管理中支持智障人士及其护理人员的方式。

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The ability of people with intellectual disability to use inhalers--an exploratory mixed methods study.
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Prescribing psychotropic drugs to adults with an intellectual disability.为成年智障者开具精神药物处方。
Aust Prescr. 2016 Aug;39(4):126-130. doi: 10.18773/austprescr.2016.048. Epub 2016 Aug 1.
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The ability of people with intellectual disability to use inhalers--an exploratory mixed methods study.
J Asthma. 2016;53(1):86-93. doi: 10.3109/02770903.2015.1065423. Epub 2015 Sep 12.
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Self-reported health of people with intellectual disability.智力残疾者的自我报告健康状况。
Intellect Dev Disabil. 2012 Aug;50(4):352-69. doi: 10.1352/1934-9556-50.4.352.
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Recurrent wheeze in children with Down syndrome: is it asthma?唐氏综合征患儿反复喘息:是哮喘吗?
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