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慢性病自我管理效能感的患者报告结果测量信息系统(PROMIS)指标验证

Validation of the PROMIS measures of self-efficacy for managing chronic conditions.

作者信息

Gruber-Baldini Ann L, Velozo Craig, Romero Sergio, Shulman Lisa M

机构信息

Division of Gerontology, Department of Epidemiology and Public Health, University of Maryland School of Medicine, 213 Howard Hall, 660 West Redwood Street, Baltimore, MD, 21201-1559, USA.

Medical University of South Carolina, Charleston, SC, USA.

出版信息

Qual Life Res. 2017 Jul;26(7):1915-1924. doi: 10.1007/s11136-017-1527-3. Epub 2017 Feb 26.

Abstract

PURPOSE

The Patient-Reported Outcomes Measurement Information System (PROMIS) was designed to develop, validate, and standardize item banks to measure key domains of physical, mental, and social health in chronic conditions. This paper reports the calibration and validation testing of the PROMIS Self-Efficacy for Managing Chronic Conditions measures.

METHODS

PROMIS Self-Efficacy for Managing Chronic Conditions item banks comprise five domains, Self-Efficacy for Managing: Daily Activities, Symptoms, Medications and Treatments, Emotions, and Social Interactions. Banks were calibrated in 1087 subjects from two data sources: 837 patients with chronic neurologic conditions (epilepsy, multiple sclerosis, neuropathy, Parkinson disease, and stroke) and 250 subjects from an online Internet sample of adults with general chronic conditions. Scores were compared with one legacy scale: Self-Efficacy for Managing Chronic Disease 6-Item scale (SEMCD6) and five PROMIS short forms: Global Health (Physical and Mental), Physical Function, Fatigue, Depression, and Anxiety.

RESULTS

The sample was 57% female, mean age = 53.8 (SD = 14.7), 76% white, 21% African American, 6% Hispanic, and 76% with greater than high school education. Full-item banks were created for each domain. All measures had good internal consistency and correlated well with SEMCD6 (r  = 0.56-0.75). Significant correlations were seen between the Self-Efficacy measures and other PROMIS short forms (r  > 0.38).

CONCLUSIONS

The newly developed PROMIS Self-Efficacy for Managing Chronic Conditions measures include five domains of self-efficacy that were calibrated across diverse chronic conditions and show good internal consistency and cross-sectional validity.

摘要

目的

患者报告结局测量信息系统(PROMIS)旨在开发、验证和标准化题库,以测量慢性病患者身体、心理和社会健康的关键领域。本文报告了PROMIS慢性病管理自我效能感测量的校准和验证测试。

方法

PROMIS慢性病管理自我效能感题库包括五个领域,即管理自我效能感:日常活动、症状、药物和治疗、情绪以及社会互动。从两个数据源对1087名受试者进行了校准:837名患有慢性神经系统疾病(癫痫、多发性硬化症、神经病变、帕金森病和中风)的患者以及250名来自患有一般慢性病的成年人在线互联网样本的受试者。将分数与一个传统量表:慢性病管理自我效能感6项量表(SEMCD6)以及五个PROMIS简表:总体健康(身体和心理)、身体功能、疲劳、抑郁和焦虑进行比较。

结果

样本中女性占57%,平均年龄=53.8(标准差=14.7),76%为白人,21%为非裔美国人,6%为西班牙裔,76%接受过高中以上教育。为每个领域创建了完整的题库。所有测量均具有良好的内部一致性,并且与SEMCD6相关性良好(r = 0.56 - 0.75)。自我效能感测量与其他PROMIS简表之间存在显著相关性(r > 0.38)。

结论

新开发的PROMIS慢性病管理自我效能感测量包括五个自我效能感领域,这些领域在不同的慢性病中进行了校准,显示出良好的内部一致性和横断面效度。

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