Moi A L, Haugsmyr E, Heisterkamp H
Department of Plastic Surgery and Burn Centre, Haukeland University Hospital, Bergen, Norway; Department of Nursing, Faculty of Health and Social Sciences, Bergen University College, Bergen, Norway.
Department of Plastic Surgery and Burn Centre, Haukeland University Hospital, Bergen, Norway.
Ann Burns Fire Disasters. 2016 Dec 31;29(4):295-299.
The aim of the present study was to examine burn patient health status, quality of life and work status 16.2 (1.7) [mean (SD)] years after burn injury, and to compare the findings with similar questionnaire data from the same people obtained 11.5 years earlier. Data on burn-specific health (BSHS-N), generic health (SF-36), overall quality of life (QOLS), injury characteristics, socio-demography and work were obtained in 2001 from 95 adult burn patients. In 2013, 78 participants were still eligible, and 34 of them (age: 53.4 [9.4] [mean (SD)], total body surface burn: 17.8% [12.7%]; full thickness injury: 4.4% [5.1%]) answered a follow up study. In 2001, the burn patients reported impaired health status, but an overall quality of life comparable to the Norwegian general population. In particular, the participants were satisfied with their close relationships. At follow up 11.5 years later, the perceived burn-specific and generic health remained unchanged, whereas overall quality of life had improved significantly (QOLS score 77.2 (10.2) vs. 73.1 (12.1), p=0.003), with the largest improvements in the items related to satisfaction with helping others, work, physical active pastimes and independence. The results indicate that self-perceived functioning and wellbeing expressed by burn-specific and generic health status remain stable after the first years post injury. The improvement in overall quality of life 16.2 years post injury suggests long-term processes of growth.
本研究旨在调查烧伤患者在烧伤后16.2(1.7)[均值(标准差)]年的健康状况、生活质量和工作状况,并将结果与11.5年前从同一批人处获得的类似问卷调查数据进行比较。2001年,从95名成年烧伤患者处获取了烧伤特异性健康(BSHS-N)、一般健康(SF-36)、总体生活质量(QOLS)、损伤特征、社会人口统计学和工作等方面的数据。2013年,78名参与者仍符合条件,其中34人(年龄:53.4 [9.4][均值(标准差)],全身烧伤面积:17.8% [12.7%];全层损伤:4.4% [5.1%])回答了一项随访研究。2001年,烧伤患者报告健康状况受损,但总体生活质量与挪威普通人群相当。特别是,参与者对他们的亲密关系感到满意。在11.5年后的随访中,烧伤特异性和一般健康的感知保持不变,而总体生活质量有显著改善(QOLS评分77.2(10.2)对73.1(12.1),p = 0.003),在与帮助他人、工作、体育活动和独立性满意度相关的项目中改善最大。结果表明,烧伤特异性和一般健康状况所表达的自我感知功能和幸福感在受伤后的头几年后保持稳定。受伤后16.2年总体生活质量的改善表明了长期的成长过程。