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都在家庭范围内?癌症幸存者与其家人之间的沟通。

All in the family? Communication of cancer survivors with their families.

作者信息

Bowen Deborah J, Hay Jennifer L, Harris-Wai Julie N, Meischke Hendrika, Burke Wylie

机构信息

Department of Bioethics and Humanities, University of Washington, P. O. Box 357120, Seattle, WA, 98195, USA.

Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, 641 Lexington Avenue, Seventh Floor, New York, NY, 10022, USA.

出版信息

Fam Cancer. 2017 Oct;16(4):597-603. doi: 10.1007/s10689-017-9987-8.

Abstract

Families often bear the burden of communication about cancer risk, as well as support during and after treatment for cancer in family members. These activities are left up to survivors and their families, with little support or knowledge of useful methods. We present data on aspects of family that are most relevant to risk of cancer-related communication and health promotion among family members. Families (a survivor, one first-degree relative and one parent; n = 313 families) were enrolled in the survey-based study. We assessed multiple aspects of family communication about risk for melanoma among family participants. Families communicate less frequently than desired about cancer risk. Most families do identify a "family health provider" who keeps family data and serves a resource for family members. The reasons given for lack of family communication are diverse but many can be addressed as part of a family communication intervention. Families are poised to improve their family communication about cancer risk and so can play a role in increasing the health of their members.

摘要

家庭常常承担着有关癌症风险沟通的负担,以及在家庭成员癌症治疗期间和之后提供支持的责任。这些活动都留给了幸存者及其家人,他们几乎得不到支持,也缺乏关于有用方法的知识。我们提供了与家庭成员之间癌症相关沟通风险和健康促进最相关的家庭方面的数据。家庭(一名幸存者、一名一级亲属和一名父母;n = 313个家庭)参与了这项基于调查的研究。我们评估了家庭参与者之间关于黑色素瘤风险的家庭沟通的多个方面。家庭关于癌症风险的沟通频率低于预期。大多数家庭确实确定了一名“家庭健康提供者”,其保存家庭数据并为家庭成员提供资源。缺乏家庭沟通的原因多种多样,但其中许多可以作为家庭沟通干预的一部分来解决。家庭有能力改善他们关于癌症风险的家庭沟通,因此可以在增进其成员健康方面发挥作用。

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