Bevans Katherine B, Riley Anne W, Landgraf Jeanne M, Carle Adam C, Teneralli Rachel E, Fiese Barbara H, Meltzer Lisa J, Ettinger Anna K, Becker Brandon D, Forrest Christopher B
Temple University College of Public Health, 1700 N Broad St, 301-H, Philadelphia, PA, 19121, USA.
Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Qual Life Res. 2017 Nov;26(11):3011-3023. doi: 10.1007/s11136-017-1629-y. Epub 2017 Jun 22.
To describe the development of pediatric family relationships measures, with versions for child self-report (8-17 years) and parent-report for children 5-17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS).
Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments.
Qualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments' validity was provided by known-group comparisons and convergence with legacy measures.
The PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children's subjective family relationship experiences.
描述儿科家庭关系测量工具的开发情况，包括适用于儿童自我报告（8 - 17岁）和5 - 17岁儿童家长报告的版本。这些测量工具旨在整合到患者报告结果测量信息系统（PROMIS）中。
对10名专家、24名儿童和8名家长进行了半结构化访谈，以引出并阐明家庭关系的基本要素。进行了系统的文献综述，以确定代表每个要素的项目概念。这些概念被转化为项目，并根据认知访谈（43名儿童）和项目可翻译性审查进行迭代修订。对2846名儿童和2262名家长进行了心理测量学研究，以进一步完善和验证这些工具。
定性程序支持了内容有效的家庭关系项目库的开发。最终的儿童和家长报告项目库各包含47个项目。使用IRT模型对单维项目库进行校准，以估计代表美国人群的项目参数，并实现计算机自适应测试管理。构建了4项和8项的简短形式，用于标准固定格式管理。所有工具都具有很强的内部一致性、重测信度，并能精确估计不同水平的家庭关系质量。已知组比较和与传统测量方法的趋同提供了这些工具有效性的初步证据。
PROMIS儿科家庭关系测量工具可应用于关注儿童主观家庭关系经历的决定因素、结果和保护作用的研究。
