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辅助技术应对痴呆症患者的能力:从研究到实践。

Assistive Technologies to Address Capabilities of People with Dementia: From Research to Practice.

机构信息

Fondation Médéric Alzheimer, Paris, France.

CoBTeK Lab & INRIA STARS, Université Côte-d'Azur, Nice, France.

出版信息

Dementia (London). 2019 May;18(4):1568-1595. doi: 10.1177/1471301217714093. Epub 2017 Jul 12.

DOI:10.1177/1471301217714093
PMID:28699364
Abstract

Assistive technologies became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyze how assistive technologies can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where assistive technologies can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past 15 years (2000-2015), discusses current issues in the design, development and economic model of assistive technologies for people with dementia, and covers how these technologies are being used and assessed.

摘要

辅助技术无处不在,几乎存在于我们生活的各个领域。它们既可以成为导致社会排斥的障碍,也可以成为促进社会包容的助力。阿尔茨海默病基金会聚集了痴呆症护理方面的国际专家,他们具有生物医学、人文和社会科学等背景,旨在根据痴呆症患者的需求,分析辅助技术如何满足他们的能力需求。讨论涵盖了痴呆症患者未满足的需求、辅助技术可以帮助痴呆症患者的日常生活活动领域、技术在提高他们的安全和福祉方面的赋能和赋权影响、使用的障碍和限制、技术评估、伦理和法律问题。能力方法(可能的自由)在以患者为中心的痴呆症护理和技术开发中显得尤为相关。重点不是解决方案,而是患者可以用它做什么:将痴呆症视为残疾,将技术视为促进患者能力的助力,为研究和实践提供了一个有用的框架。本文总结了这些概念在过去 15 年(2000-2015 年)的专业实践和公共政策中的发展情况,讨论了当前痴呆症患者辅助技术的设计、开发和经济模式方面的问题,并介绍了这些技术的使用和评估情况。

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