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死于癌症:沟通、同理心与临床想象力

Dying From Cancer: Communication, Empathy, and the Clinical Imagination.

作者信息

Cripe Larry D, Frankel Richard M

机构信息

Indiana University Simon Cancer Center Indianapolis, IN, USA.

Indiana University School of Medicine, Indianapolis, IN, USA.

出版信息

J Patient Exp. 2017 Jun;4(2):69-73. doi: 10.1177/2374373517699443. Epub 2017 May 11.

Abstract

Medical oncologists and patients with advanced cancer struggle to discuss prognosis, goals, options, and values in a timely fashion. As a consequence, many patients die receiving aggressive treatment potentially inconsistent with their fully informed preferences and experience increased symptom burden and distress. The goals of patient - oncologist communication include exchanging information, building relationship, and engaging in shared decisions. Empathy is perhaps especially essential to effective patient - oncologist communication when the end of life is approaching. We speculate that, in addition to being a skilled response to a patient's negative emotions, empathy is an emergent property of the relationship that allows the patient and oncologist to imagine what it will be like to navigate the transition from living with to dying from cancer; and to prepare for the transition. We propose that effective empathy: 1) requires an attentive, curious and imaginative physician; 2) acknowledges the complex and shifting goals as the end of life approaches; and 3) begins with a willingness of physicians to check in and find out what she may have misunderstood or misperceived. Empathy in end of life conversations cultivates the shared experiences necessary to co-create the new goals of care that underlie excellent end of life care.

摘要

肿瘤内科医生和晚期癌症患者很难及时讨论预后、目标、选择和价值观。因此,许多患者在接受积极治疗时死亡,而这些治疗可能与他们充分知情的偏好不一致,并且患者会承受更多的症状负担和痛苦。医患沟通的目标包括交流信息、建立关系以及共同做出决策。当生命接近终点时,同理心对于有效的医患沟通可能尤为重要。我们推测,同理心除了是对患者负面情绪的一种熟练反应外,还是医患关系中产生的一种特性,它使患者和肿瘤内科医生能够想象从患癌生存到因癌死亡的转变过程会是什么样,并为这种转变做好准备。我们提出,有效的同理心:1)需要一位专注、好奇且富有想象力的医生;2)承认随着生命接近终点,目标是复杂且不断变化的;3)始于医生愿意核实并弄清楚自己可能误解或误判的情况。临终谈话中的同理心培养了共同创造优质临终关怀基础的新护理目标所必需的共同体验。

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