UCB Celltech, Slough, Berkshire, UK.
Patient. 2018 Feb;11(1):1-8. doi: 10.1007/s40271-017-0264-6.
Patients are increasingly recognised as the true customers of healthcare. By providing insights and perspectives, patients can help the wider healthcare community better understand their needs and ultimately enhance the value of healthcare solutions being developed. In the development of new medicines, for example, meaningful patient engagement can enable the pharmaceutical industry, healthcare providers and other stakeholders to achieve more meaningful health outcomes. While both the pharmaceutical industry and regulators have achieved some progress in incorporating patient perspectives into their activities, the lack of standardised best practices and metrics has made it challenging to achieve consistency and measure success in patient engagement. Practical guidance for patient engagement can facilitate better interactions between patients or patient groups and other collaborators, e.g. industry, regulators and other healthcare stakeholders. Accordingly, UCB has developed an internal model for Patient Group Engagement incorporating four key principles, based on shared ambition, transparency, accountability and respect, essential for effective collaborations.
患者越来越被视为医疗保健的真正客户。通过提供见解和观点，患者可以帮助更广泛的医疗保健社区更好地了解他们的需求，并最终提高正在开发的医疗保健解决方案的价值。例如，在新药开发中，有意义的患者参与可以使制药行业、医疗保健提供者和其他利益相关者实现更有意义的健康结果。虽然制药行业和监管机构在将患者观点纳入其活动方面都取得了一些进展，但缺乏标准化的最佳实践和指标使得在患者参与方面实现一致性和衡量成功变得具有挑战性。患者参与的实用指南可以促进患者或患者群体与其他合作者（如行业、监管机构和其他医疗保健利益相关者）之间更好的互动。因此，UCB 基于共同的目标、透明度、问责制和尊重这四个关键原则，制定了内部患者群体参与模型，这对于有效的合作至关重要。
