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本文引用的文献

1
Distributive justice, diversity, and inclusion in precision medicine: what will success look like?精准医学中的分配正义、多样性与包容性：成功会是什么样子？
Genet Med. 2017 Feb;19(2):157-159. doi: 10.1038/gim.2016.92. Epub 2016 Aug 4.
2
Prevalence of Disability and Disability Type Among Adults--United States, 2013.2013年美国成年人中的残疾患病率及残疾类型
MMWR Morb Mortal Wkly Rep. 2015 Jul 31;64(29):777-83. doi: 10.15585/mmwr.mm6429a2.
3
Persons with disabilities as an unrecognized health disparity population.残疾人作为一个未被认识到的健康差异人群。
Am J Public Health. 2015 Apr;105 Suppl 2(Suppl 2):S198-206. doi: 10.2105/AJPH.2014.302182. Epub 2015 Feb 17.
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The success of pharmacogenomics in moving genetic association studies from bench to bedside: study design and implementation of precision medicine in the post-GWAS era.从实验室到临床：遗传关联研究在药物基因组学中的成功——后 GWAS 时代精准医学的研究设计与实施。
Hum Genet. 2012 Oct;131(10):1615-26. doi: 10.1007/s00439-012-1221-z. Epub 2012 Aug 25.
5
Physical accessibility in primary health care settings: results from California on-site reviews.初级医疗保健环境中的物理可达性：来自加利福尼亚现场审查的结果。
Disabil Health J. 2012 Jul;5(3):159-67. doi: 10.1016/j.dhjo.2012.02.002. Epub 2012 May 24.
6
Universal design of research: inclusion of persons with disabilities in mainstream biomedical studies.研究的通用设计：将残疾人士纳入主流生物医学研究中。
Sci Transl Med. 2011 May 11;3(82):82cm12. doi: 10.1126/scitranslmed.3002133.
7
Health disparities between women with and without disabilities: a review of the research.残疾妇女与非残疾妇女健康差距研究综述。
Soc Work Public Health. 2010 May;25(3):368-86. doi: 10.1080/19371910903240969.
8
Disability and genetics in the era of genomic medicine.基因组医学时代的残疾与遗传学
Nat Rev Genet. 2008 Oct;9(10):797-802. doi: 10.1038/nrg2453.
9
Ethical challenges and complexities of including people with intellectual disability as participants in research.将智障人士纳入研究参与者所面临的伦理挑战与复杂性。
J Intellect Dev Disabil. 2006 Sep;31(3):173-9; discussion 180-91. doi: 10.1080/13668250600876392.

Precision medicine, health disparities, and ethics: the case for disability inclusion.

作者信息

Sabatello Maya

机构信息

Department of Psychiatry, Columbia University, New York, New York, USA.

出版信息

Genet Med. 2018 Apr;20(4):397-399. doi: 10.1038/gim.2017.120. Epub 2017 Aug 3.

DOI:10.1038/gim.2017.120
PMID:28771252
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5797520/
Abstract
摘要