Koski Jessica, Kelley Mary Lou, Nadin Shevaun, Crow Maxine, Prince Holly, Wiersma Elaine C, Mushquash Christopher J
Northwestern Ontario, Centre for Addictions and Mental Health, Thunder Bay, ON, Canada.
School of Social Work and Centre for Education and Research on Aging & Health, Lakehead University, Thunder Bay, ON, Canada.
Palliat Care. 2017 Jul 21;10:1178224217719441. doi: 10.1177/1178224217719441. eCollection 2017.
Providing palliative care in Indigenous communities is of growing international interest. This study describes and analyzes a unique journey mapping process undertaken in a First Nations community in rural Canada. The goal of this participatory action research was to improve quality and access to palliative care at home by better integrating First Nations' health services and urban non-Indigenous health services. Four journey mapping workshops were conducted to create a care pathway which was implemented with 6 clients. Workshop data were analyzed for learnings and promising practices. A follow-up focus group, workshop, and health care provider surveys identified the perceived benefits as improved service integration, improved palliative care, relationship building, communication, and partnerships. It is concluded that journey mapping improves service integration and is a promising practice for other First Nations communities. The implications for creating new policy to support developing culturally appropriate palliative care programs and cross-jurisdictional integration between the federal and provincial health services are discussed. Future research is required using an Indigenous paradigm.
在原住民社区提供姑息治疗在国际上受到越来越多的关注。本研究描述并分析了在加拿大农村一个原住民社区开展的独特的旅程映射过程。这项参与式行动研究的目标是通过更好地整合原住民健康服务和城市非原住民健康服务,提高在家中获得姑息治疗的质量和可及性。举办了四次旅程映射研讨会以创建一条护理路径,并应用于6名患者。对研讨会数据进行了分析以获取经验教训和有前景的做法。后续焦点小组、研讨会和医疗服务提供者调查确定了感知到的益处,包括改善服务整合、改善姑息治疗、建立关系、沟通和伙伴关系。得出的结论是,旅程映射改善了服务整合,对其他原住民社区而言是一种有前景的做法。讨论了制定新政策以支持制定符合文化习俗的姑息治疗计划以及联邦和省级卫生服务之间跨辖区整合的意义。需要采用原住民范式进行未来研究。