Department of Oncology, McMaster University, Hamilton, ON, Canada.
Escarpment Cancer Research Institute, Hamilton, ON, Canada.
BMC Palliat Care. 2017 Aug 30;16(1):44. doi: 10.1186/s12904-017-0227-7.
Measuring the care experience at end-of-life (EOL) to inform quality improvement is a priority in many countries. We validated the CaregiverVoice survey, a modified version of the VOICES questionnaire, completed by bereaved caregivers to capture perceptions of care received in the last three months of a patient's life.
We conducted a retrospective survey of bereaved caregivers representing palliative care patients who died in a residential hospice and/or received palliative homecare in Ontario, Canada. Statistical analyses were completed to establish construct and concurrent validity, as well as reliability of the survey.
Responses were obtained from 906 caregivers: 330 surveyed from homecare agencies and 576 from hospices. The CaregiverVoice survey demonstrated concurrent validity in scores correlating to FAMCARE2 items, and construct validity in performing according to expected patterns, e.g., correlation of scores to qualitative perceptions and significant variability based on care contexts such as place of death and setting of care (p < 0.01). Reliability was exhibited in good inter-item correlation of ratings for specific care settings and no significant differences in ratings regardless of whether up to a year had passed since death of patient.
The CaregiverVoice survey demonstrated validity and reliability in the populations assessed. This survey represents one common measure that can be standardized across multiple care settings and is useful for assessing the care experience that can help inform local and national quality improvement activities.
在许多国家，衡量临终关怀体验以促进质量改进是当务之急。我们验证了 CaregiverVoice 调查，这是 VOICES 问卷的修改版本，由丧亲的照顾者完成，以捕捉患者生命的最后三个月所接受的护理的看法。
我们对代表安大略省居住在收容所和/或接受姑息治疗的姑息治疗患者的丧亲照顾者进行了回顾性调查。完成了统计分析，以建立调查的结构和同时效度以及可靠性。
共收到 906 名照顾者的答复：330 名来自家庭护理机构，576 名来自收容所。CaregiverVoice 调查在与 FAMCARE2 项目相关的分数上表现出同时效度，并且在按照预期模式表现出结构效度，例如，分数与定性看法相关，以及根据死亡地点和护理环境等护理环境的显著差异（p <0.01）。在特定护理环境的评分中，评分的良好项目间相关性以及无论患者死亡是否已过去一年，评分均无显着差异，这表明可靠性。
CaregiverVoice 调查在评估人群中表现出了有效性和可靠性。该调查代表了一种常见的衡量标准，可以在多个护理环境中标准化，并且对于评估可以帮助为当地和国家质量改进活动提供信息的护理体验非常有用。
