a Department of Psychology, Communication Studies Program , Iowa State University.
Health Commun. 2019 Jan;34(1):100-109. doi: 10.1080/10410236.2017.1384432. Epub 2017 Oct 26.
Parents have a significant role in the management of a child's chronic condition. Parents are often the only consistent individuals managing a child's health across his or her childhood and adolescence (e.g., present for all appointments and medical procedures). Many of the responsibilities required of parents involve communication work, where parents must strategically and actively design messages as they interact with medical professionals, other family, and friends. Using communication privacy management theory, we analyzed interviews conducted with 35 parents to understand the motivations and strategies involved in their regulation of information about their child's chronic condition. These findings have important practical implications because parental involvement in a chronically ill child's care has direct effects on familial adaptation and adjustment.
父母在管理孩子的慢性疾病方面起着重要作用。父母往往是在孩子的整个童年和青春期期间管理其健康状况的唯一稳定个体（例如，出席所有预约和医疗程序）。父母需要承担许多职责，其中包括沟通工作，在与医疗专业人员、其他家庭成员和朋友互动时，父母必须战略性地、积极地设计信息。我们使用沟通隐私管理理论，分析了对 35 名父母进行的访谈，以了解他们调节孩子慢性疾病信息的动机和策略。这些发现具有重要的实际意义，因为父母对慢性病患儿的照护参与直接影响家庭的适应和调整。
