Versus Arthritis Centre for Epidemiology, Centre for MSK Research, University of Manchester and NIHR Biomedical Research Centre, Manchester University Hospital NHS Trust, Manchester, UK.
School of Nursing and Health Sciences, University of Dundee, Dundee, UK.
Curr Rheumatol Rep. 2019 Sep 6;21(10):57. doi: 10.1007/s11926-019-0855-4.
Effective transitional care for adolescents and young adults (AYA) with rheumatic musculoskeletal disease (RMD) is fundamental to rheumatology care provision. Here we review the recent evidence from the literature on transition in rheumatology and debate why universal implementation has yet to be recognised.
Evidence of need for transitional care continues to be reported. The triphasic nature of transitional care remains poorly recognised, and the third phase following transfer to adult rheumatology is particularly under-researched in spite of the recognition of the age-related trajectories of transition skill development during young adulthood. Several rheumatology-specific transitional care interventions have now been evaluated but the search for valid measures including outcome continues. Finally, the need to study transition at a health system level is increasingly recognised. Future research in this area should consider the developmental trajectories of AYA as well as the social-ecological model of transition readiness, which focuses on the interactions between AYA, caregivers and providers (and the systems they are part of) as these are the likely targets of any intervention to improve health transitions.
有效的青少年和年轻成人(AYA)风湿性肌肉骨骼疾病(RMD)过渡护理是风湿病护理提供的基础。在此,我们回顾了风湿病过渡方面的最新文献证据,并探讨了为什么尚未普遍认识到这一问题。
持续有需要过渡护理的证据报告。过渡护理的三阶段性质仍然认识不足,尽管认识到在年轻成人期间过渡技能发展的与年龄相关的轨迹,但在转移到成人风湿病后的第三阶段研究仍很少。现在已经评估了几种风湿病特定的过渡护理干预措施,但仍在寻找有效的措施,包括结局。最后,越来越认识到需要在卫生系统层面研究过渡问题。该领域的未来研究应考虑 AYA 的发展轨迹以及过渡准备的社会生态模型,该模型侧重于 AYA、护理人员和提供者(以及他们所在的系统)之间的相互作用,因为这些可能是任何改善健康过渡的干预措施的目标。