症状负担与自我维权：探索女性癌症幸存者之间的关系
Symptom Burden and Self-Advocacy: Exploring the Relationship Among Female Cancer Survivors.
作者信息
Hagan Teresa L, Gilbertson-White Stephanie, Cohen Susan M, Temel Jennifer S, Greer Joseph A, Donovan Heidi S
机构信息
Harvard Medical School.
University of Iowa.
出版信息
Clin J Oncol Nurs. 2018 Feb 1;22(1):E23-E30. doi: 10.1188/18.CJON.E23-E30.
Abstract
BACKGROUND: Although patient self-advocacy is a critical component of patient-centered care, the association between symptom burden and self- advocacy has received little attention. .
OBJECTIVES: This analysis evaluates the degree to which self-advocacy is associated with symptom burden among women with a history of cancer. .
METHODS
Participants completed online or paper questionnaires. Descriptive statistics and ordinary least squares regression models were used to analyze the association between the three dimensions of self-advocacy and two dimensions of symptom burden.
FINDINGS
Participants reported moderate levels of symptom burden. Fatigue, disturbed sleep, and memory problems were most common. Informed decision making was positively associated with symptom burden and participants' burden across the three most severe symptoms. Effective communication was negatively associated with total symptom burden and the degree to which symptoms interfered with daily life.
摘要
背景
尽管患者自我主张是患者为中心的医疗的关键组成部分，但症状负担与自我主张之间的关联很少受到关注。
目的
本分析评估有癌症病史的女性中自我主张与症状负担的关联程度。
方法
参与者完成在线或纸质问卷。描述性统计和普通最小二乘回归模型用于分析自我主张的三个维度与症状负担的两个维度之间的关联。
结果
参与者报告症状负担处于中等水平。疲劳、睡眠障碍和记忆问题最为常见。知情决策与症状负担以及参与者在三种最严重症状方面的负担呈正相关。有效沟通与总症状负担以及症状干扰日常生活的程度呈负相关。
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