1 Interdisciplinary Palliative Care Unit, III. Department of Medicine, University Medical Center of the Johannes Gutenberg University of Mainz , Mainz, Germany .
2 Institute for Medical Biostatistics, Epidemiology and Informatics, Department of Biometry and Bioinformatics, University Medical Centre of the Johannes Gutenberg University , Mainz, Germany .
J Palliat Med. 2018 Jul;21(7):1005-1010. doi: 10.1089/jpm.2017.0537. Epub 2018 Feb 13.
Patient-reported outcome (PRO) measurement is crucial to assess the benefit of psychotherapeutic interventions. Is repeated assessment of psychometric self-report data possible, as inpatient palliative care patients suffer from physical and psychological symptoms? What is the self-perceived strain caused by the assessment? Objective The main objective of this study was to investigate the feasibility of a repeated comprehensive psychometric self-assessment of inpatient palliative care patients. Secondary objectives were the PROs of the psychometric assessment.
We conducted a prospective cohort study. Patients admitted to our palliative care unit (PCU) were reviewed for eligibility within 72 hours. They were asked for weekly self-reports regarding hope (HHI-D), well-being (FACIT-Sp), anxiety and depression (STADI), and quality of life (QoL; EORTC-QLQ-C-30 single item). The strain caused by the assessment was assessed by a numeric rating scale (0-10) and free comments.
Within 11 months, 219 patients were admitted to the PCU. In total, 92 patients were eligible. The most frequent exclusion criterion was "life expectancy <1 week." A total of 60 patients participated at the first point of measurement. The mean of self-perceived strain (Likert scale 0-10) due to the assessment was 1.44 (SD 1.99) at T1. Twenty-four patients participated twice. Here we found increased scores for physical well-being and QoL.
Repeated assessment of psychological conditions is feasible for 27.4% of inpatients at a German PCU. The most limiting factor is life expectancy of only days at admission to the PCU. However, the self-perceived strain is low.
患者报告的结果（PRO）测量对于评估心理治疗干预的益处至关重要。在住院姑息治疗患者遭受身体和心理症状的情况下，是否可以重复评估心理测量自评数据？评估会带来多大的自我感知压力？
本研究的主要目的是调查对住院姑息治疗患者进行重复全面心理测量自评的可行性。次要目标是心理测量评估的 PRO。
我们进行了一项前瞻性队列研究。在 72 小时内对入住我们姑息治疗病房（PCU）的患者进行了资格审查。每周要求他们报告希望（HHI-D）、幸福感（FACIT-Sp）、焦虑和抑郁（STADI）以及生活质量（EORTC-QLQ-C-30 单项）的自评。通过数字评分量表（0-10）和自由评论评估评估带来的压力。
在 11 个月内，有 219 名患者入住 PCU。共有 92 名患者符合条件。最常见的排除标准是“预期寿命<1 周”。共有 60 名患者参加了第一次测量。由于评估导致的自我感知压力的平均值（Likert 量表 0-10）在 T1 时为 1.44（SD 1.99）。有 24 名患者参加了两次。在这里，我们发现身体幸福感和生活质量的评分增加了。
在德国 PCU，27.4%的住院患者可以重复评估心理状况。最具限制性的因素是入院时的预期寿命仅为几天。然而，自我感知的压力较低。
