Mathijssen Elke Ge, Vriezekolk Johanna E, Eijsbouts Agnes Mm, van den Hoogen Frank Hj, van den Bemt Bart Jf
Department of Rheumatology, Sint Maartenskliniek, Nijmegen, the Netherlands.
Department of Rheumatology, Radboud University Medical Centre, Nijmegen, the Netherlands.
Patient Prefer Adherence. 2018 Mar 7;12:349-358. doi: 10.2147/PPA.S152759. eCollection 2018.
The objectives of this study were to explore the needs of patients with rheumatoid arthritis (RA) regarding support for medication use and to gain insight into their perspective on the suitability of eHealth technologies to address these needs.
Three focus groups were conducted with 28 patients with RA. Audio recordings made during the focus groups were transcribed verbatim. Two researchers independently performed an inductive, thematic analysis on the data (ie, the transcripts and field notes).
The following three themes that described support needs of patients with RA for medication use were identified in the data: 1) informational support; 2) practical support; and 3) emotional support. Informational support reflected the provision of information and facts, including advice, suggestions, and feedback from health care providers. Practical support included the reinforcement of practical skills as well as the provision of medication aids and pharmacy services. Emotional support reflected a trusted patient-health care provider relationship, characterized by good communication. Although potential advantages of eHealth technologies to address the patients' support needs were recognized, concerns over matters such as personal interaction with health care providers, privacy and data security, and the quality and reliability of online information were prevalent.
Patients with RA have informational, practical, and emotional support needs for medication use. Informational support seems to be most important. From the patients' perspective, eHealth technologies may have the potential to address these needs. However, these technologies are regarded as a complement to, rather than a replacement of, current practices.
本研究的目的是探讨类风湿性关节炎（RA）患者在药物使用支持方面的需求，并深入了解他们对电子健康技术满足这些需求的适用性的看法。
对28名RA患者进行了3个焦点小组访谈。焦点小组访谈期间的录音被逐字转录。两名研究人员对数据（即转录本和现场记录）独立进行了归纳性主题分析。
数据中确定了以下三个描述RA患者药物使用支持需求的主题：1）信息支持；2）实际支持；3）情感支持。信息支持反映了信息和事实的提供，包括医疗保健提供者的建议、意见和反馈。实际支持包括实用技能的强化以及药物辅助工具和药房服务的提供。情感支持反映了一种值得信赖的患者与医疗保健提供者的关系，其特点是良好的沟通。尽管认识到电子健康技术在满足患者支持需求方面的潜在优势，但对与医疗保健提供者的个人互动、隐私和数据安全以及在线信息的质量和可靠性等问题的担忧仍然普遍存在。
RA患者在药物使用方面有信息、实际和情感支持需求。信息支持似乎最为重要。从患者的角度来看，电子健康技术可能有潜力满足这些需求。然而，这些技术被视为当前做法的补充，而非替代。
Zotero 插件