Red Cross War Memorial Children's Hospital and Groote Schuur Hospital, Paediatric Rheumatology University of Cape Town, Klipfontein Road, Rondebosch, Cape Town, 7700, South Africa.
Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.
Rheumatol Int. 2018 Apr;38(Suppl 1):19-26. doi: 10.1007/s00296-018-3980-x. Epub 2018 Apr 7.
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Afrikaans language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 91 JIA patients (4.4% systemic JIA, 35.1% oligoarticular, 23.1% RF negative polyarthritis, 37.4% other categories), and 98 healthy children were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Afrikaans version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.
《青少年关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告的结局测量工具,能够全面评估儿童青少年特发性关节炎(JIA)患者的疾病状况。我们报告了 JAMAR 的家长和患者版本在南非荷兰语中的跨文化适应性和验证结果。我们测试了 10 名 JIA 家长和患者对问卷的阅读理解能力。每个参与中心都被要求在 100 名连续 JIA 患者或 6 个月内连续就诊的所有患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其家长发放 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫的α、量表间相关性、测试-重测信度和结构效度(收敛和判别效度)。在一个儿科风湿病中心共纳入了 91 名 JIA 患者(4.4%全身型 JIA、35.1%少关节型、23.1% RF 阴性多关节炎、37.4%其他类型)和 98 名健康儿童。JAMAR 的各个组成部分能够很好地区分健康受试者和 JIA 患者。所有 JAMAR 组成部分都表现出令人满意的心理计量学性能。总之,JAMAR 的南非荷兰语版本是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。