Division of Pediatric Rheumatology, Department of Pediatrics, Alberta Children's Hospital, 2888 Shaganappi Trail NW, Calgary, T3B 6A8, Canada.
Rheumatology Division, The Montreal Children's Hospital, McGill University Health Center, Montréal, QC, Canada.
Rheumatol Int. 2018 Apr;38(Suppl 1):83-90. doi: 10.1007/s00296-018-3942-3. Epub 2018 Apr 7.
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Canadian varieties of English and French. The reading comprehension of the questionnaires were tested in a probe sample of ten parents and ten JIA patients for Canadian English and other ten parents and ten JIA patients for Canadian French. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 208 JIA patients (2.9% systemic, 41.8% oligoarticular, 27.9% RF negative polyarthritis, 27.4% other categories) and 152 healthy children, were enrolled at two paediatric rheumatology centres. The JAMAR components discriminated well healthy subjects from JIA patients. Notably, there was no significant difference between the healthy subjects and their affected peers in the psychosocial quality of life variable. All JAMAR components revealed good psychometric performances. In conclusion, the Canadian English and French versions of the JAMAR are valid tools for the assessment of children with JIA and are suitable for use both in routine clinical practice and clinical research.
《幼年特发性关节炎多维评估报告》（JAMAR）是一种新的家长/患者报告结局测量工具，能够全面评估儿童幼年特发性关节炎（JIA）的疾病状况。我们报告了 JAMAR 的父母和患者版本在加拿大英语和法语中的跨文化适应性和验证结果。在加拿大英语的十个家长和十个 JIA 患者以及加拿大法语的十个家长和十个 JIA 患者的探测样本中测试了问卷的阅读理解能力。每个参与中心都被要求收集人口统计学、临床数据和 JAMAR，在 100 名连续 JIA 患者或 6 个月内连续看到的所有患者中，并向 100 名健康儿童及其父母施测 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题：3 个李克特假设、地板/天花板效应、内部一致性、Cronbach's alpha、量表间相关性、测试-重测信度和结构效度（收敛和判别效度）。共有 208 名 JIA 患者（2.9%全身型、41.8%少关节型、27.9%RF 阴性多关节炎型、27.4%其他类型）和 152 名健康儿童在两个儿科风湿病中心参与。JAMAR 各组成部分能很好地区分健康受试者和 JIA 患者。值得注意的是，在心理社会生活质量变量方面，健康受试者与其患病同龄人之间没有显著差异。所有 JAMAR 组成部分均表现出良好的心理计量学性能。总之，加拿大英语和法语版的 JAMAR 是评估 JIA 儿童的有效工具，适用于常规临床实践和临床研究。
