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《青少年关节炎多维评估报告》(JAMAR)的阿曼阿拉伯语版本。

The Omani Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

机构信息

Department of Child Health and Pediatric Rheumatology, Royal Hospital, Muscat, Oman.

Department of Pediatric Rheumatology, King Faisal Specialist Hospital & Research Center, Alfaisal University, Riyadh, Saudi Arabia.

出版信息

Rheumatol Int. 2018 Apr;38(Suppl 1):299-306. doi: 10.1007/s00296-018-3965-9. Epub 2018 Apr 7.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Omani Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 57 JIA patients (22.8% systemic, 28.1% oligoarticular, 35.1% RF negative polyarthritis, 14.0% other categories) and 85 healthy children, were enrolled in two centres. Notably, none of the enrolled JIA patients is affected with enthesitis-related arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Omani Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

摘要

《青少年关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告的结局测量工具,能够全面评估儿童青少年特发性关节炎(JIA)的疾病状况。我们报告了 JAMAR 家长版和患者版在阿曼阿拉伯语中的跨文化适应性和验证结果。我们在 10 名 JIA 父母和患者中测试了问卷的阅读理解能力。每个参与中心被要求在 100 名连续 JIA 患者或 6 个月内所有连续就诊的患者中收集人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其父母发放 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:3 个李克特假设、地板/天花板效应、内部一致性、克朗巴赫α、量表间相关性、测试-重测信度和结构效度(收敛和判别效度)。共有 57 名 JIA 患者(22.8%全身型、28.1%少关节型、35.1%RF 阴性多关节炎、14.0%其他类型)和 85 名健康儿童在两个中心被纳入研究。值得注意的是,纳入的 JIA 患者中没有一个患有附着点相关关节炎或未分化关节炎。JAMAR 各组成部分能够很好地区分健康受试者和 JIA 患者。所有 JAMAR 组成部分均表现出令人满意的心理计量学性能。总之,阿曼阿拉伯语版的 JAMAR 是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。

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