Ólafsdóttir Kristin Lara, Jónsdóttir Helga, Fridriksdóttir Nanna, Sigurdardóttir Valgerdur, Haraldsdóttir Erna
RN, Hospital Palliative Care Consulting Team at Landspitali, National University Hospital of Iceland.
Professor, Faculty of Nursing, University of Iceland, Reykjavík, Iceland.
Int J Palliat Nurs. 2018 Apr 2;24(4):170-177. doi: 10.12968/ijpn.2018.24.4.170.
Advance care planning (ACP) is well recognised as an important component of palliative care. However, there is still a need to explore ways in which it can become a part of routine practice, ensuring a timely and person-centred discussion.
To explore patients newly diagnosed with advanced lung cancer and their family members' experiences of engaging in a person-centred and structured ACP discussion facilitated by palliative care nurses in an outpatient oncology clinic at the University Hospital of Iceland.
An exploratory qualitative design employing semi-structured interviews and thematic analysis. The intervention included a structured ACP discussion, aided by a booklet.
Key themes emerged describing families' and patients' experiences and highlighted that the timing and approach of the ACP discussion was appropriate and helpful, even though the discussion was sensitive and difficult. Using a routine approach with a flexible structure normalised the discussion and made it easier for the patients to take the lead in the discussion.
ACP discussion can be part of an integrated palliative care and oncology service if implemented in a systematic way.
预先照护计划(ACP)是姑息治疗的一个重要组成部分,这一点已得到广泛认可。然而,仍有必要探索如何使其成为常规医疗实践的一部分,以确保进行及时且以患者为中心的讨论。
探讨冰岛大学医院门诊肿瘤诊所中,新诊断为晚期肺癌的患者及其家庭成员参与由姑息治疗护士推动的、以患者为中心的结构化 ACP 讨论的经历。
采用探索性定性设计,运用半结构化访谈和主题分析。干预措施包括借助一本手册进行的结构化 ACP 讨论。
出现了描述家庭和患者经历的关键主题,并强调尽管 ACP 讨论敏感且困难,但讨论的时机和方式是恰当且有帮助的。采用具有灵活结构的常规方法使讨论常态化,让患者更易于主导讨论。
如果以系统的方式实施,ACP 讨论可以成为姑息治疗与肿瘤服务整合的一部分。