Brinker Titus Josef, Rudolph Stefanie, Richter Daniela, von Kalle Christof
Department of Translational Oncology, National Center for Tumor Diseases, German Cancer Research Center, Heidelberg, Germany.
German Cancer Consortium (DKTK), Heidelberg, Germany.
JMIR Cancer. 2018 May 11;4(1):e10160. doi: 10.2196/10160.
This article describes the DataBox project which offers a perspective of a new health data management solution in Germany. DataBox was initially conceptualized as a repository of individual lung cancer patient data (structured and unstructured). The patient is the owner of the data and is able to share his or her data with different stakeholders. Data is transferred, displayed, and stored online, but not archived. In the long run, the project aims at replacing the conventional method of paper- and storage-device-based handling of data for all patients in Germany, leading to better organization and availability of data which reduces duplicate diagnostic procedures, treatment errors, and enables the training as well as usage of artificial intelligence algorithms on large datasets.
本文介绍了DataBox项目，该项目提供了德国一种新型健康数据管理解决方案的视角。DataBox最初被设想为个体肺癌患者数据（结构化和非结构化）的存储库。患者是数据的所有者，能够与不同利益相关者共享他或她的数据。数据在线传输、显示和存储，但不存档。从长远来看，该项目旨在取代德国所有患者基于纸张和存储设备处理数据的传统方法，从而实现更好的数据组织和可用性，减少重复诊断程序、治疗错误，并能够在大型数据集上进行人工智能算法的训练和使用。
