Santos Maria M, Kopelowicz Alex, López Steven R
Department of Psychology, University of Southern California.
Department of Psychiatry and Biobehavioral Sciences, School of Medicine, University of California, Los Angeles, Olive View-UCLA Medical Center Psychiatry, Sylmar, California.
J Nerv Ment Dis. 2018 Jun;206(6):439-445. doi: 10.1097/NMD.0000000000000826.
This study examined the views about the future of persons with schizophrenia and their caregivers to understand what is at stake in engaging in recovery. The views of 60 Mexican-origin consumer-caregiver dyads were coded by three independent raters using a recovery literature-based coding system of recovery components: social relations, caregiving burden relief, independence, self-responsibility, and empowerment. General recovery expectations were also rated. Interrater reliability, component frequency, and congruence between the consumers and caregivers' expectations were statistically examined. Dominant recovery components for consumers and caregivers were independence (72.5%), general expectations for recovery (51%), and social relations (43%). Relatives differed in two important ways. Consumers held significantly greater expectations for independence (p < 0.01), whereas caregivers focused more on general recovery (p < 0.001). What matters for recovery for this sample of Mexican-origin consumers and caregivers differs. Addressing differences in views may facilitate person-centered treatment that considers the views of consumers and caregivers.
本研究调查了精神分裂症患者及其照料者对未来的看法，以了解参与康复过程中所涉及的利害关系。60对墨西哥裔患者-照料者二元组的看法由三名独立评分者使用基于康复文献的康复组成部分编码系统进行编码：社会关系、照料负担减轻、独立性、自我责任和赋权。还对总体康复期望进行了评分。对评分者间信度、组成部分频率以及患者和照料者期望之间的一致性进行了统计学检验。患者和照料者的主要康复组成部分是独立性（72.5%）、总体康复期望（51%）和社会关系（43%）。亲属在两个重要方面存在差异。患者对独立性的期望显著更高（p < 0.01），而照料者更关注总体康复（p < 0.001）。对于这个墨西哥裔患者和照料者样本来说，康复中重要的方面有所不同。解决观点上的差异可能有助于以患者为中心的治疗，这种治疗会考虑患者和照料者的观点。
