Palliative Care Institute Liverpool, Cancer Research Centre, University of Liverpool, 200 London Road, Liverpool, L3 9TA, UK.
Royal Liverpool and Broadgreen University Hospitals NHS Trust, Prescot Street, Liverpool, L7 8XP, UK.
BMC Palliat Care. 2018 Jul 6;17(1):91. doi: 10.1186/s12904-018-0345-x.
There is limited understanding of the 'lived experience' of palliative care patient within the acute care setting. Failing to engage with and understand the views of patients and those close to them, has fundamental consequences for future health delivery. Understanding 'patient experience' can enable care providers to ensure services are responsive and adaptive to individual patient need.
The aim of this study was to explore the 'lived experience' of a group of patients with palliative care needs who had recently been in-patients in one acute hospital trust in the north-west of England. Qualitative research using narrative interviews was undertaken, and data was analysed using thematic analysis. A sample of 20 consecutive patients complying with the inclusion/exclusion criteria were recruited and interviewed.
Patient Sample: Of the 20 patients recruited, there was a fairly equal gender split; all had a cancer diagnosis and the majority were white British, with an age range of 43-87 years. Findings from Interviews: Overall inpatient experience was viewed positively. Individual narratives illustrated compassionate and responsive care, with the patient at the centre. Acts of compassion appeared to be expressed through the 'little things' staff could do for patients, i.e., time to talk, time to care, humanity and comfort measures. AHSPCT involvement resulted in perceived improvements in pain control and holistic wellbeing. However, challenges were evident, particularly regarding over-stretched staff and resources, and modes of communication, which seemed to impact on patient experience.
Listening to patients' experiences of care across the organisation provided a unique opportunity to impact upon delivery of care. Further research should focus on exploring issues such as: why some patients within the same organisation have a positive experience of care, while others may not; how do staff attitudes and behaviours impact on the experience of care; transitions of care from hospital to home, and the role of social networks.
在急性护理环境中，对姑息治疗患者的“生活体验”知之甚少。未能与患者及其亲近的人接触并理解他们的观点，对未来的医疗服务提供具有根本影响。了解“患者体验”可以使护理人员能够确保服务能够满足患者的个人需求并具有适应性。
本研究旨在探讨一组在英格兰西北部一家急性医院信托中最近住院的有姑息治疗需求的患者的“生活体验”。采用叙事访谈进行定性研究，使用主题分析进行数据分析。符合纳入/排除标准的 20 名连续患者被招募并进行了访谈。
患者样本：在招募的 20 名患者中，性别分布相当均衡；所有人都有癌症诊断，大多数是白人英国人，年龄在 43-87 岁之间。访谈结果：总体住院体验被认为是积极的。个体叙述说明了富有同情心和响应性的护理，以患者为中心。同情的行为似乎通过工作人员为患者做的“小事”来表达，例如，与患者交谈的时间、关心的时间、人性和舒适措施。AHSPCT 的参与被认为改善了疼痛控制和整体幸福感。然而，挑战显而易见，特别是在人员和资源紧张以及沟通方式方面，这些似乎对患者体验产生了影响。
倾听患者对整个组织的护理体验提供了一个独特的机会，以改善护理服务的提供。进一步的研究应侧重于探索以下问题：为什么在同一个组织中，有些患者有积极的护理体验，而有些患者则没有；员工的态度和行为如何影响护理体验；从医院到家庭的护理过渡，以及社交网络的作用。
