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癌症患者的电子健康素养及其对网络信息的使用。

EHealth literacy in patients with cancer and their usage of web-based information.

机构信息

Medizinische Klinik II, Hämatologie und Internistische Onkologie, Universitätsklinikum Jena, Am Klinikum 1, 07747, Jena, Germany.

出版信息

J Cancer Res Clin Oncol. 2018 Sep;144(9):1843-1850. doi: 10.1007/s00432-018-2703-8. Epub 2018 Jul 13.

Abstract

OBJECTIVE

Our aim was to learn more about the association between the sources of information cancer patients and caregivers use and their eHealth literacy.

METHODS

We distributed a standardized questionnaire among participants of a lecture program on complementary and alternative medicine (CAM).

RESULTS

Among 182 attendants, the Internet was the third most important source of information (57%), preceded by the oncologist (67%) and print media (61%). Print media was associated with female participants and web-based information with younger ones. Regarding eHealth literacy, more than half (58.5%) had an above average eHEALS score. Nevertheless, the biggest concern was not being able to differentiate between reliable and not reliable websites. The correlation between a high eHealth literacy and regular search of web-based cancer information was significant (p < 0.001).

CONCLUSION

The number of people using the Internet as a source of cancer information has increased over the past years and will rise in the future. However, only half of the population has the knowledge and capability to access and differentiate the massive web-based data. Improving eHealth literacy within the public will expand the knowledge of regular patients and help them become a well-informed and equal partner in decision making.

摘要

目的

我们旨在更多地了解癌症患者和护理人员使用的信息来源与其电子健康素养之间的关系。

方法

我们向补充和替代医学(CAM)讲座计划的参与者分发了一份标准化问卷。

结果

在 182 名与会者中,互联网是第三大重要信息来源(57%),其次是肿瘤医生(67%)和印刷媒体(61%)。与女性参与者相关的是印刷媒体,与年轻参与者相关的是基于网络的信息。关于电子健康素养,超过一半(58.5%)的人具有高于平均水平的 eHEALS 评分。尽管如此,最大的担忧是无法区分可靠和不可靠的网站。电子健康素养高与定期搜索基于网络的癌症信息之间存在显著相关性(p<0.001)。

结论

在过去几年中,使用互联网作为癌症信息来源的人数有所增加,并且在未来还会增加。然而,只有一半的人具有访问和区分大量基于网络的数据的知识和能力。提高公众的电子健康素养将扩大普通患者的知识,并帮助他们成为知情且平等的决策参与者。

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