Schoeman Renata, Albertyn Ruth, de Klerk Manie
Stellenbosch University Business School, Stellenbosch University, South Africa.
Private Practice, Cape Town, South Africa.
S Afr J Psychiatr. 2017 Aug 31;23:1072. doi: 10.4102/sajpsychiatry.v23i0.1072. eCollection 2017.
Attention-deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder, with a chronic, costly and debilitating course if untreated. Limited access to diagnosis and treatment for adults with ADHD contributes to the cost of the disorder and the burden of disease.
This study aims to identify the barriers to care for adults with ADHD.
A qualitative analysis of semi-structured interviews with 10 key opinion leaders in the field of adult ADHD in SA was conducted to obtain narratives regarding frustrations experienced when treating adults with ADHD and needs of patients regarding management of ADHD. Qualitative content analysis was completed using Atlas.ti (version 7).
Four key themes which emerged from the interviews were 'lack of recognition of the disorder', 'lack of access to diagnosis', 'lack of access to treatment' and 'a life of perpetual failure'. Core to these themes are the lack of knowledge amongst health care professionals, funders, and society at large.
Our findings expand on previous research regarding the need to increase the knowledge base on adult ADHD. A collaborative stakeholder approach is needed to provide research and training for improved diagnosis and treatment for adults with ADHD in the South African context.
注意力缺陷多动障碍(ADHD)是一种常见的神经发育障碍,如果不治疗,病程会漫长、代价高昂且使人衰弱。成年ADHD患者获得诊断和治疗的机会有限,这增加了该疾病的成本和疾病负担。
本研究旨在确定成年ADHD患者获得护理的障碍。
对南非成年ADHD领域的10位关键意见领袖进行了半结构化访谈的定性分析,以获取有关治疗成年ADHD患者时遇到的挫折以及患者对ADHD管理需求的叙述。使用Atlas.ti(版本7)完成定性内容分析。
访谈中出现的四个关键主题是“对该疾病缺乏认识”、“无法获得诊断”、“无法获得治疗”和“终生失败”。这些主题的核心是医疗保健专业人员、资助者和整个社会缺乏相关知识。
我们的研究结果扩展了先前关于增加成人ADHD知识基础必要性的研究。需要采取利益相关者合作的方法,为南非成年ADHD患者的诊断和治疗提供研究和培训,以改善现状。